Documents for our Annual General Meeting (AGM) 2018 taking place at DST offices, 17 Dominion Street, London, EC2M  2EF on Friday 7th Sept 2018 @ 4:00pm, can be downloaded below:

Membership not only entitles you to voting rights in future AGM’s, but also entitles you (if you have an r(20) patient in the immediate family) to access our CLOSED Facebook support group forum, for sharing thoughts and experiences with other r(20) families, in confidence.