Help us spread the word!

As you know this Charity is all about supporting and raising awareness for those with the very rare R(20) diagnosis. We have been delighted with the line up of experts and speakers who have agreed to join us at our first ever Family Conference this year.  With lots of families from


BPSU – Rare Disease Conference 2017

One of our amazing volunteers, Dawn, agreed to represent us as the Rare Disease Conference at Birmingham Children’s Hospital and did a fantastic job manning a stall. The event was focusing on childhood rare diseases, the development of new treatments and how to best deliver them.  There was a great


10 Reasons to go to our Family Conference

We could list way more than 10 reasons why you should join us in Liverpool this August. But, this list will get you started. 10. Be inspired or be inspiring. 9. Meet the Ring20 Research and Support charity’s trustees. 8. Share and compare stories with others. 7. Take part in our


New ways to support us while you shop!

We are pleased to announce that PayPal has added us to their list of Charities you can donate too while using their PayPal mobile app.  If this is new to you click here to find out more:  https://www.paypal.com/uk/webapps/mpp/mobile-apps If you already use this App following an update you will see a


Jeans for Genes Day Grant

As you know in June we found out that we were eligible for a grant from this year’s Jeans for Genes day. Receipt of the full grant would be subject to Jeans for Genes meeting their overall fundraising target on the day. So we are delighted to let you know that we

See our previous posts here.