Sullivan family

Fantastic Fundraising Initiative!

One of our r(20) families based in Scotland, Chris and Claire Sullivan were inspired following our families conference to instigate their very own year long fundraising initiative, with an target of £20,000 for our new Research Fund. They have recruited the support of family, friends and the local community and


Help us spread the word!

As you know this Charity is all about supporting and raising awareness for those with the very rare R(20) diagnosis. We have been delighted with the line up of experts and speakers who have agreed to join us at our first ever Family Conference this year.  With lots of families from


BPSU – Rare Disease Conference 2017

One of our amazing volunteers, Dawn, agreed to represent us as the Rare Disease Conference at Birmingham Children’s Hospital and did a fantastic job manning a stall. The event was focusing on childhood rare diseases, the development of new treatments and how to best deliver them.  There was a great


10 Reasons to go to our Family Conference

We could list way more than 10 reasons why you should join us in Liverpool this August. But, this list will get you started. 10. Be inspired or be inspiring. 9. Meet the Ring20 Research and Support charity’s trustees. 8. Share and compare stories with others. 7. Take part in our


New ways to support us while you shop!

We are pleased to announce that PayPal has added us to their list of Charities you can donate too while using their PayPal mobile app.  If this is new to you click here to find out more: If you already use this App following an update you will see a

See our previous posts here.