1.0Ring20 Forschung und Support UK CIOhttps://ring20researchsupport.co.uk/deAlisonhttps://ring20researchsupport.co.uk/de/author/alison/rich600338<blockquote class="wp-embedded-content" data-secret="bJZVhZbSes"><a href="https://ring20researchsupport.co.uk/de/story/griffins-story/">Griffins Geschichte</a></blockquote><iframe sandbox="allow-scripts" security="restricted" src="https://ring20researchsupport.co.uk/de/story/griffins-story/embed/#?secret=bJZVhZbSes" width="600" height="338" title="„Griffin’s story“ – Ring20 Research and Support UK CIO" data-secret="bJZVhZbSes" frameborder="0" marginwidth="0" marginheight="0" scrolling="no" class="wp-embedded-content"></iframe><script> /*! This file is auto-generated */ !function(d,l){"use strict";l.querySelector&&d.addEventListener&&"undefined"!=typeof URL&&(d.wp=d.wp||{},d.wp.receiveEmbedMessage||(d.wp.receiveEmbedMessage=function(e){var t=e.data;if((t||t.secret||t.message||t.value)&&!/[^a-zA-Z0-9]/.test(t.secret)){for(var s,r,n,a=l.querySelectorAll('iframe[data-secret="'+t.secret+'"]'),o=l.querySelectorAll('blockquote[data-secret="'+t.secret+'"]'),c=new RegExp("^https?:$","i"),i=0;i<o.length;i++)o[i].style.display="none";for(i=0;i<a.length;i++)s=a[i],e.source===s.contentWindow&&(s.removeAttribute("style"),"height"===t.message?(1e3<(r=parseInt(t.value,10))?r=1e3:~~r<200&&(r=200),s.height=r):"link"===t.message&&(r=new URL(s.getAttribute("src")),n=new URL(t.value),c.test(n.protocol))&&n.host===r.host&&l.activeElement===s&&(d.top.location.href=t.value))}},d.addEventListener("message",d.wp.receiveEmbedMessage,!1),l.addEventListener("DOMContentLoaded",function(){for(var e,t,s=l.querySelectorAll("iframe.wp-embedded-content"),r=0;r<s.length;r++)(t=(e=s[r]).getAttribute("data-secret"))||(t=Math.random().toString(36).substring(2,12),e.src+="#?secret="+t,e.setAttribute("data-secret",t)),e.contentWindow.postMessage({message:"ready",secret:t},"*")},!1)))}(window,document); //# sourceURL=https://ring20researchsupport.co.uk/wp-includes/js/wp-embed.min.js </script>https://ring20researchsupport.co.uk/wp-content/uploads/2025/02/IMG_6289-scaled.jpg25601707Amy from the USA is Griffin’s mother. Here she tells us their journey to diagnosis, encompassing multiple hospitals and treatments, and the impact living with r(20) syndrome is having on the whole family. Thriving to surviving Griffin was a very active, silly, and caring 5.5-year-old boy. He had just finished Pre-K and was hitting many […]