{"id":1063,"date":"2021-03-10T16:47:54","date_gmt":"2021-03-10T16:47:54","guid":{"rendered":"https:\/\/ring20researchsupport.co.uk\/?page_id=1063"},"modified":"2021-05-12T14:30:12","modified_gmt":"2021-05-12T13:30:12","slug":"how-to-treat-r20","status":"publish","type":"page","link":"https:\/\/ring20researchsupport.co.uk\/de\/for-medics-researchers\/how-to-treat-r20\/","title":{"rendered":"Wie behandelt man r(20)"},"content":{"rendered":"
\n\t\t\t\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Anf\u00e4lle sprechen normalerweise nicht auf medizinische, di\u00e4tetische oder Neurostimulation an und es gibt derzeit keine empfohlene Behandlung f\u00fcr das r(20)-Syndrom. Es gibt Berichte \u00fcber die Wirksamkeit der ketogenen Di\u00e4t und der Vagusnervstimulation in Einzelf\u00e4llen, andere F\u00e4lle sprechen jedoch nicht auf diese Behandlungen an und es gibt keine ausreichenden Beweise.<\/p>

Eine Polytherapie sollte vermieden werden, da dies das Risiko von Nebenwirkungen erh\u00f6ht und die Anfallskontrolle wahrscheinlich nicht verbessert.<\/p>

Es ist oft unn\u00f6tig, alle NCSE-Episoden zu behandeln, die Minuten, Stunden oder sogar Tage andauern k\u00f6nnen, da sich die Patienten normalerweise spontan erholen. Die Anwendung von Notfallmedikamenten kann unwirksam sein und bei regelm\u00e4\u00dfiger Anwendung zu einer Sedierung f\u00fchren und die Lebensqualit\u00e4t erheblich beeintr\u00e4chtigen.<\/p>

Bei diesem Syndrom wurde \u00fcber pl\u00f6tzlichen unerwarteten Tod berichtet, und daher m\u00fcssen Entscheidungen, keine Medikamente zu verschreiben, dies ber\u00fccksichtigen.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t

EMPFEHLUNGEN<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t
\n\t\t\t<\/path><\/svg>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t\t

Individuelle Notfallprotokolle<\/h3>\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Individuelle Behandlungspl\u00e4ne sollten erstellt werden f\u00fcr:<\/p>

  • anhaltende Anf\u00e4lle<\/li>
  • krampfhafter Status epilepticus<\/li>
  • nicht konvulsiver Status epilepticus (NCSE)<\/li><\/ul><\/div><\/div><\/div><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
    \n\t\t\t
    \n\t\t\t\t\t\t
    \n\t\t\t\t\t\t\t
    \n\t\t\t
    \n\t\t\t<\/path><\/svg>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t
    \n\t\t\t\t\t

    Versorgen Sie den Patienten und\/oder Pfleger mit:<\/h3>\t\t\t\t<\/div>\n\t\t\t\t
    \n\t\t\t\t\t\t\t\t\t
    • Sicherheitsratschl\u00e4ge, insbesondere in Bezug auf den \u201eVerwirrtheitszustand\u201c im Zusammenhang mit NCSE-Episoden<\/li>
    • SUDEP-Risikomanagement<\/li>
    • Genetische Beratung<\/li>
    • Anforderungen an die Unterst\u00fctzung von Patienten, Betreuern und Arbeitgebern (neuropsychologische Bewertung, Anleitung, potenzielle psychiatrische Unterst\u00fctzung)<\/li><\/ul><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
      \n\t\t\t
      \n\t\t\t\t\t\t
      \n\t\t\t\t\t\t\t
      \n\t\t\t
      \n\t\t\t<\/path><\/svg>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t
      \n\t\t\t\t\t

      \u00dcberpr\u00fcfen Sie die Auswirkungen von Anf\u00e4llen, Medikamenten und Komorbidit\u00e4ten auf:<\/h3>\t\t\t\t<\/div>\n\t\t\t\t
      \n\t\t\t\t\t\t\t\t\t
      • Allt\u00e4gliche Aktivit\u00e4ten<\/li>
      • Gesamtwohlbefinden<\/li>
      • Psychische Gesundheit<\/li>
      • K\u00f6rperliche Gesundheit<\/li>
      • Unabh\u00e4ngigkeit<\/li>
      • Biologisches und psychiatrisches Gesundheitsverhalten<\/li><\/ul><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
        \n\t\t\t\t\t\t
        \n\t\t\t\t\t
        \n\t\t\t
        \n\t\t\t\t\t\t
        \n\t\t\t\t\t\t\t\t\t

        Komorbidit\u00e4ten<\/h3>

        Bis zum Beginn der Anf\u00e4lle scheint die kindliche Entwicklung normal zu sein, jedoch folgt h\u00e4ufig ein rascher R\u00fcckgang der intellektuellen Leistungsf\u00e4higkeit. Bereits erworbene F\u00e4higkeiten k\u00f6nnen verloren gehen. Dieser F\u00e4higkeitsverlust reicht vom Verlust einiger F\u00e4higkeiten, wobei die intellektuellen Funktionen im normalen Bereich bleiben, bis hin zu einem erheblichen Verlust an F\u00e4higkeiten, einschlie\u00dflich Schwierigkeiten mit der Mobilit\u00e4t und dem Verlust von Sprach- und Sprachfunktionen. Das r(20)-Syndrom ist mit einer epileptischen Enzephalopathie in Zeiten schlechter Anfallskontrolle verbunden.<\/p>

        In der Schule\/Hochschule und am Arbeitsplatz ist wahrscheinlich Unterst\u00fctzung erforderlich. Verhaltensauff\u00e4lligkeiten wie Aggressionen vor und\/oder nach einem Anfall werden gemeldet. Viele Menschen entwickeln autistische Merkmale. Eine Vorhersage, wie stark Lern- und Verhaltensprobleme in Zukunft sein werden, ist zu Beginn der Epilepsie nicht m\u00f6glich.<\/p>

        Insgesamt kann etwa die H\u00e4lfte der Patienten einen Intelligenzquotienten haben, der als Erwachsener im normalen Bereich liegt, aber viele von ihnen haben m\u00f6glicherweise einen relativen R\u00fcckgang ihrer kognitiven F\u00e4higkeiten w\u00e4hrend der Kindheit erlitten.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

        Seizures do not typically respond to medical, dietary or neurostimulation and there is currently no recommended treatment for r(20) syndrome. There are reports of efficacy of the ketogenic diet and vagal nerve stimulation in individual cases however other cases do not respond to these treatments and there is insufficient evidence. Polytherapy should be avoided as […]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":76,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-1063","page","type-page","status-publish","hentry"],"yoast_head":"\nHow to treat r(20) - Ring20 Research and Support UK CIO<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ring20researchsupport.co.uk\/de\/for-medics-researchers\/how-to-treat-r20\/\" \/>\n<meta property=\"og:locale\" content=\"de_DE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"How to treat r(20) - Ring20 Research and Support UK CIO\" \/>\n<meta property=\"og:description\" content=\"Seizures do not typically respond to medical, dietary or neurostimulation and there is currently no recommended treatment for r(20) syndrome. There are reports of efficacy of the ketogenic diet and vagal nerve stimulation in individual cases however other cases do not respond to these treatments and there is insufficient evidence. Polytherapy should be avoided as […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ring20researchsupport.co.uk\/de\/for-medics-researchers\/how-to-treat-r20\/\" \/>\n<meta property=\"og:site_name\" content=\"Ring20 Research and Support UK CIO\" \/>\n<meta property=\"article:modified_time\" content=\"2021-05-12T13:30:12+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Gesch\u00e4tzte Lesezeit\" \/>\n\t<meta name=\"twitter:data1\" content=\"2\u00a0Minuten\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/for-medics-researchers\\\/how-to-treat-r20\\\/\",\"url\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/for-medics-researchers\\\/how-to-treat-r20\\\/\",\"name\":\"How to treat r(20) - Ring20 Research and Support UK CIO\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/#website\"},\"datePublished\":\"2021-03-10T16:47:54+00:00\",\"dateModified\":\"2021-05-12T13:30:12+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/for-medics-researchers\\\/how-to-treat-r20\\\/#breadcrumb\"},\"inLanguage\":\"de\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/ring20researchsupport.co.uk\\\/for-medics-researchers\\\/how-to-treat-r20\\\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/for-medics-researchers\\\/how-to-treat-r20\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"For Medics\\\/Researchers\",\"item\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/for-medics-researchers\\\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"How to treat r(20)\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/#website\",\"url\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/\",\"name\":\"Ring20 Research and Support UK CIO\",\"description\":\"Promoting research, education and continuous support to end undiagnosed and misdiagnosed Ring20 epilepsy\",\"publisher\":{\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"de\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/#organization\",\"name\":\"Ring20 Research and Support CIO\",\"url\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"de\",\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/wp-content\\\/uploads\\\/2021\\\/03\\\/Ring20_logo-high-resolution.jpg\",\"contentUrl\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/wp-content\\\/uploads\\\/2021\\\/03\\\/Ring20_logo-high-resolution.jpg\",\"width\":2357,\"height\":666,\"caption\":\"Ring20 Research and Support CIO\"},\"image\":{\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/#\\\/schema\\\/logo\\\/image\\\/\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Behandlung von r(20) - Ring20 Research and Support UK CIO","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/ring20researchsupport.co.uk\/de\/for-medics-researchers\/how-to-treat-r20\/","og_locale":"de_DE","og_type":"article","og_title":"How to treat r(20) - Ring20 Research and Support UK CIO","og_description":"Seizures do not typically respond to medical, dietary or neurostimulation and there is currently no recommended treatment for r(20) syndrome. There are reports of efficacy of the ketogenic diet and vagal nerve stimulation in individual cases however other cases do not respond to these treatments and there is insufficient evidence. Polytherapy should be avoided as […]","og_url":"https:\/\/ring20researchsupport.co.uk\/de\/for-medics-researchers\/how-to-treat-r20\/","og_site_name":"Ring20 Research and Support UK CIO","article_modified_time":"2021-05-12T13:30:12+00:00","twitter_card":"summary_large_image","twitter_misc":{"Gesch\u00e4tzte Lesezeit":"2\u00a0Minuten"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/ring20researchsupport.co.uk\/for-medics-researchers\/how-to-treat-r20\/","url":"https:\/\/ring20researchsupport.co.uk\/for-medics-researchers\/how-to-treat-r20\/","name":"Behandlung von r(20) - Ring20 Research and Support UK CIO","isPartOf":{"@id":"https:\/\/ring20researchsupport.co.uk\/#website"},"datePublished":"2021-03-10T16:47:54+00:00","dateModified":"2021-05-12T13:30:12+00:00","breadcrumb":{"@id":"https:\/\/ring20researchsupport.co.uk\/for-medics-researchers\/how-to-treat-r20\/#breadcrumb"},"inLanguage":"de","potentialAction":[{"@type":"ReadAction","target":["https:\/\/ring20researchsupport.co.uk\/for-medics-researchers\/how-to-treat-r20\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/ring20researchsupport.co.uk\/for-medics-researchers\/how-to-treat-r20\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/ring20researchsupport.co.uk\/"},{"@type":"ListItem","position":2,"name":"For Medics\/Researchers","item":"https:\/\/ring20researchsupport.co.uk\/for-medics-researchers\/"},{"@type":"ListItem","position":3,"name":"How to treat r(20)"}]},{"@type":"WebSite","@id":"https:\/\/ring20researchsupport.co.uk\/#website","url":"https:\/\/ring20researchsupport.co.uk\/","name":"Ring20 Forschung und Support UK CIO","description":"F\u00f6rderung von Forschung, Bildung und kontinuierlicher Unterst\u00fctzung, um nicht diagnostizierte und falsch diagnostizierte Ring20-Epilepsie zu beenden","publisher":{"@id":"https:\/\/ring20researchsupport.co.uk\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/ring20researchsupport.co.uk\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"de"},{"@type":"Organization","@id":"https:\/\/ring20researchsupport.co.uk\/#organization","name":"Ring20 Forschung und Support CIO","url":"https:\/\/ring20researchsupport.co.uk\/","logo":{"@type":"ImageObject","inLanguage":"de","@id":"https:\/\/ring20researchsupport.co.uk\/#\/schema\/logo\/image\/","url":"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2021\/03\/Ring20_logo-high-resolution.jpg","contentUrl":"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2021\/03\/Ring20_logo-high-resolution.jpg","width":2357,"height":666,"caption":"Ring20 Research and Support CIO"},"image":{"@id":"https:\/\/ring20researchsupport.co.uk\/#\/schema\/logo\/image\/"}}]}},"_links":{"self":[{"href":"https:\/\/ring20researchsupport.co.uk\/de\/wp-json\/wp\/v2\/pages\/1063","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ring20researchsupport.co.uk\/de\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/ring20researchsupport.co.uk\/de\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/ring20researchsupport.co.uk\/de\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/ring20researchsupport.co.uk\/de\/wp-json\/wp\/v2\/comments?post=1063"}],"version-history":[{"count":0,"href":"https:\/\/ring20researchsupport.co.uk\/de\/wp-json\/wp\/v2\/pages\/1063\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/ring20researchsupport.co.uk\/de\/wp-json\/wp\/v2\/pages\/76"}],"wp:attachment":[{"href":"https:\/\/ring20researchsupport.co.uk\/de\/wp-json\/wp\/v2\/media?parent=1063"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}