May 2014 saw our first r(20) families meeting, held at Young Epilepsy here in the UK for families affected by the condition.
The meeting was added on to the end of Young Epilepsy’s own Parent’s and Families Information Event, where we exhibited as Ring20 Research and Support UK for the first time.
We met with other parents of children with epilepsy, networked with organisations similar to ourselves, whilst actively participating in the day itself and various workshops on offer.
As there are so few families in the UK (and indeed Europe), we were never expecting a large group for our meet, however we managed 3 out of a possible 5 families attending on the day itself, which is great!
I’m sure more will make it to the next one.
Read more about our Families Meeting (PDF file)
View videos from the meeting