As a patient support group we aim to regularly attend and/or host an exhibition stand at various forthcoming conferences/events around the UK, raising awareness of r(20) syndrome and our patient support group.

This provides valuable opportunities for us to network and forge relationships with:

  • health professionals (clinicians, researchers, geneticists)
  • policy makers (MP’s, NHS representatives)
  • other similar charities/support groups (representing rare epilepsies/rare diseases)

Checkout our forthcoming events list here:

Midlands Rare Disease Showcase Birmingham Children's Hospital

Midlands Rare Disease Showcase

22nd Oct ’16

Birmingham Children’s Hospital



CRDN logo


Cambridge International Rare Disease Summit

25th Oct ’16