As a patient support group we aim to regularly attend and/or host an exhibition stand at various forthcoming conferences/events around the UK, raising awareness of r(20) syndrome and our patient support group.

This provides valuable opportunities for us to network and forge relationships with:

  • health professionals (clinicians, researchers, geneticists)
  • policy makers (MP’s, NHS representatives)
  • other similar charities/support groups (representing rare epilepsies/rare diseases)

Checkout our forthcoming events list here:

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Cambridge Rare Disease Summit 2017 – program

23rd Oct ’17

Robinson College, Cambridge

ANNUAL RARE DISEASE PATIENT NETWORK MEETING 2017 cardiff

 

Annual Rare Disease Patient Network Meeting

18th Oct ’17

Park Inn by Radisson, Cardiff