As a patient support group we aim to regularly attend and/or host an exhibition stand at various forthcoming conferences/events around the UK, raising awareness of r(20) syndrome and our patient support group.
This provides valuable opportunities for us to network and forge relationships with:
Checkout our forthcoming events list here:
Cambridge Rare Disease Summit 2017 – program
23rd Oct ’17
Robinson College, Cambridge
Annual Rare Disease Patient Network Meeting
18th Oct ’17
Park Inn by Radisson, Cardiff