This year we are creating the opportunity to bring as many r(20) families together over a weekend, with the main focus being a workshop to create content for a patient information booklet specifically about r(20) syndrome, created by-families-for-families.
To help create a fun and informal atmosphere, we are hosting the workshop at Birmingham City Football Club and inviting Rossie Stone, a comic book illustrator at Dekko Comics to bring all your ideas to life!
Our very own Medical Advisor Dr Sophia Varadkar will be there, together with Emma Ninnis (Epilepsy Specialist Nurse) – whom some of you will remember from Liverpool? We are also in the process of trying to secure an adult neurologist to attend.
The main workshop will run between 10am-4pm (tbc) on Saturday 23rd November and includes lunch and drinks, followed by a Stadium Tour before dinner in the evening. For those staying over until Sunday there will be free time to catch-up – which we know is vital for mutual support. We may even have time to take a trip to nearby StarCity for some family fun activities?
Tickets available here: Workshop Tickets
Depending on your preferences, location and budget you can choose to attend just the Saturday workshop (and dinner if you wish) or stay longer, from Friday evening until Sunday lunchtime and make a weekend of it. Travel and accommodation will be your own responsibility, although if we are successful in securing further funding prior to the event, we hope to be able to offer some kind of grant towards this. Budget hotels very close to the venue include Hotel Ibis Bordesley Circus and The Royal George.
We have agreed a limited no. of rooms at a preferential rate with the Ibis Bordersley Hotel Birmingham for our workshop as follows:
Friday 22/11/2019 15 hotel rooms
£59.00 Bed & Breakfast per room for single occupancy
£64.00 Bed & Breakfast per room for double occupancy
Saturday 23/11/2019 15 hotel rooms
£96.00 Bed & Breakfast per room for single occupancy
£101.00 Bed & Breakfast per room for double occupancy
Unfortunately the hotel does not offer family rooms. The maximum occupancy of our hotel rooms is 2 adults (however there are a small number of interconnecting rooms but they may not be available at this rate).
Please contact the hotel directly via email email@example.com or firstname.lastname@example.org providing your name to reserve your room(s). The hotel will contact you back to confirm the booking and take payment.
Please quote Allison Watson from Ring20 and the booking number 879716.
Cancellation: 28 days prior to arrival for full cancellation with no charge. After this, full charges apply. (If you book online at a pre-paid rate- you pay in advance and you cannot cancel or amend the booking free of charge)
Payment: 100% to be paid 28 days prior to arrival
Room quantity and type depends upon availability at the time of booking. The rates and conditions quoted are based on the above booking request and information. In the event of any changes (i.e. length of stay to be reduced, number of rooms to decrease/increase) the hotel may review its financial offer.
This quotation is valid until 16th of August 2019. Please note that the hotel is unable to guarantee the same rate, availability or T&C if booking is not confirmed by this date.
After the event we are planning to get our r(20) youth involved in a project to work with Rossie’s team to produce the final booklet and are seeking funding so that we can print the booklets and provide them FREE of charge to all r(20) families.
What are my transport/parking options for getting to and from the event?
Nearest train stations
Birmingham New Street: 1.9 miles
Birmingham Moor Street: 1.4 miles
Bordesley Station: 0.6 miles
St. Andrew’s Trillion Trophy Stadium is served by a number of bus routes. For more information and timetables, please click here to visit the networkwestmidlands travel site.
M5, M6, M40, M42
BCFC is approx 8.8 miles from Birmingham airport.
There is free parking for all delegates at Birmingham City FC.
Maps and transport information can be found here: https://www.bcfc.com/tickets/essential-information/new-to-the-ground/
Is the event suitable for all the family?
Yes, we hope to make this an informal and fun-filled event, with lots of interaction and participation, as well as plenty of time to meet and share experiences with other r(20) families. There will be no creche or childcare facility, so parents remain responsible for their own children at all times.
How can I contact the organiser with any questions?
For more information or to answer any questions contact email@example.com or firstname.lastname@example.org