{"id":12212,"date":"2025-02-03T19:11:59","date_gmt":"2025-02-03T19:11:59","guid":{"rendered":"https:\/\/ring20researchsupport.co.uk\/?p=12212"},"modified":"2025-02-03T20:16:29","modified_gmt":"2025-02-03T20:16:29","slug":"vns_study","status":"publish","type":"post","link":"https:\/\/ring20researchsupport.co.uk\/fr\/2025\/02\/vns_study\/","title":{"rendered":"\u00c9tude VNS"},"content":{"rendered":"
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Avez-vous un implant VNS ou avez-vous eu un VNS dans le pass\u00e9 ?<\/strong>
Si tel est le cas, vous pourriez contribuer \u00e0 la recherche pour d\u00e9terminer si le VNS est une th\u00e9rapie efficace pour les personnes atteintes du syndrome r(20).
Le Dr Ken Myers, neurologue clinicien-chercheur p\u00e9diatrique et professeur adjoint \u00e0 l'H\u00f4pital de Montr\u00e9al pour enfants, au Canada, est un membre \u00e9minent de notre Conseil consultatif scientifique international de Ring20\u00a0<\/a>Avec l\u2019aide d\u2019un \u00e9tudiant en m\u00e9decine, le Dr Myers rassemble une s\u00e9rie de cas pour illustrer l\u2019exp\u00e9rience des patients ayant recours \u00e0 la VNS chez les personnes atteintes du syndrome r(20) \u2013 ce qui n\u2019a pas encore \u00e9t\u00e9 d\u00e9crit dans la litt\u00e9rature m\u00e9dicale. Les r\u00e9sultats pourraient aider les \u00e9quipes m\u00e9dicales \u00e0 prendre des d\u00e9cisions \u00e9clair\u00e9es quant \u00e0 l\u2019opportunit\u00e9 de proposer ou non une th\u00e9rapie VNS aux personnes atteintes du syndrome r(20) \u00e0 l\u2019avenir.<\/p>

Lisez la suite pour en savoir plus sur cette \u00e9tude et comment vous pouvez y participer\u2026<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t

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OBJECTIF : \u00c9valuer l'efficacit\u00e9 de la stimulation du nerf vague (SNV) chez les patients atteints d'\u00e9pilepsie r(20) et pharmacor\u00e9sistante<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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Pourquoi participer\u2026<\/h2>

En comprenant vos exp\u00e9riences r\u00e9elles d\u2019utilisation d\u2019un VNS, les chercheurs peuvent essayer de d\u00e9terminer si le VNS est une option de traitement efficace pour le syndrome r(20) et quand et pour qui cette th\u00e9rapie doit \u00eatre envisag\u00e9e.<\/p>

Suis-je \u00e9ligible\u2026<\/h2>

Pour \u00eatre admissible \u00e0 participer \u00e0 cette \u00e9tude, vous devez :<\/p>

  1. Avoir un diagnostic confirm\u00e9 de chromosome en anneau 20<\/li>
  2. Avoir un diagnostic confirm\u00e9 d'\u00e9pilepsie<\/li>
  3. Avoir subi une implantation d\u2019un stimulateur du nerf vague \u00e0 un moment donn\u00e9 (il n\u2019est pas n\u00e9cessaire qu\u2019il soit actuellement actif)<\/li>
  4. \u00catre en mesure de donner votre consentement ; le consentement \u00e9clair\u00e9 peut \u00eatre obtenu aupr\u00e8s du patient ou du soignant.<\/li><\/ol>

    Id\u00e9alement, vous parlerez anglais ou fran\u00e7ais, mais si ce n\u2019est pas le cas, l\u2019\u00e9quipe de recherche s\u2019efforcera de trouver un moyen de collecter les donn\u00e9es vous concernant.<\/p>

    Est-ce que cela me sera b\u00e9n\u00e9fique ?<\/h2>

    Les r\u00e9sultats pourraient aider \u00e0 \u00e9clairer les \u00e9quipes m\u00e9dicales dans leur prise de d\u00e9cision.\u00a0
    Les principaux avantages sont de sensibiliser \u00e0 l\u2019ampleur du probl\u00e8me que peut repr\u00e9senter l\u2019\u00e9pilepsie chez les patients atteints de r(20) et de souligner la n\u00e9cessit\u00e9 de nouvelles th\u00e9rapies. Plus pr\u00e9cis\u00e9ment, si nous montrons un taux de r\u00e9ussite raisonnablement \u00e9lev\u00e9 avec la VNS, cela encouragera, esp\u00e9rons-le, les cliniciens \u00e0 recommander cette th\u00e9rapie plus t\u00f4t dans l\u2019\u00e9volution clinique des patients atteints de r(20).<\/p>

    Que vais-je devoir faire\u2026<\/h2>

    Dans un premier temps, on vous demandera votre consentement \u00e0 participer \u00e0 la recherche dans la base de donn\u00e9es. Ensuite, on vous demandera de r\u00e9pondre \u00e0 quelques questions lors d'un court entretien t\u00e9l\u00e9phonique ou vid\u00e9o d'une dur\u00e9e d'environ 20 minutes, puis de consentir \u00e0 ce que l'\u00e9quipe de recherche acc\u00e8de \u00e0 votre dossier m\u00e9dical (y compris \u00e0 vos r\u00e9sultats g\u00e9n\u00e9tiques) par l'interm\u00e9diaire de votre m\u00e9decin.
    Toutes les donn\u00e9es doivent \u00eatre collect\u00e9es avant la fin juillet 2025.<\/p>

    Que se passera-t-il apr\u00e8s\u2026<\/h2>

    L'\u00e9quipe de recherche a pour objectif de publier un article de recherche sur les r\u00e9sultats d'ici la fin de 2025 et de les pr\u00e9senter \u00e0 la r\u00e9union annuelle de la Ligue canadienne contre l'\u00e9pilepsie (la plus grande conf\u00e9rence canadienne sur l'\u00e9pilepsie) et, esp\u00e9rons-le, \u00e0 une r\u00e9union internationale telle que la r\u00e9union annuelle de l'American Epilepsy Society.<\/p>

    Des questions\u2026<\/h2>

    Si vous avez des questions, veuillez contacter directement l'\u00e9quipe de recherche en utilisant l'e-mail ci-dessous.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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    Pour demander \u00e0 participer \u00e0 cette \u00e9tude, ou si vous avez d'autres questions, veuillez contacter<\/p>

    Docteur Ken Myers : kenneth.myers@mcgill.ca<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t

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    Un webinaire sera organis\u00e9 avec le Dr Myers afin que vous puissiez en savoir plus sur l'\u00e9tude et poser des questions.<\/p>

    Les d\u00e9tails seront publi\u00e9s ici sous peu\u2026<\/p>

    Un enregistrement sera ajout\u00e9 \u00e0 cette page Web par la suite.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t

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    <\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

    Avez-vous d\u00e9j\u00e0 eu recours \u00e0 un implant VNS ? D\u00e9couvrez comment vous pouvez contribuer \u00e0 la recherche sur le r(20)\u2026 Que le VNS vous ait aid\u00e9 ou non, votre exp\u00e9rience compte.<\/p>","protected":false},"author":3,"featured_media":11884,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[84,43],"tags":[],"class_list":["post-12212","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-research"],"yoast_head":"\nVNS study - Ring20 Research and Support UK CIO<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ring20researchsupport.co.uk\/fr\/2025\/02\/vns_study\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"VNS study - Ring20 Research and Support UK CIO\" \/>\n<meta property=\"og:description\" content=\"Have you ever had a VNS implant? 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