{"id":6699,"date":"2021-06-10T09:34:46","date_gmt":"2021-06-10T08:34:46","guid":{"rendered":"https:\/\/ring20researchsupport.co.uk\/?page_id=6699"},"modified":"2023-05-25T10:35:12","modified_gmt":"2023-05-25T09:35:12","slug":"uk-rare-epilepsies-together","status":"publish","type":"page","link":"https:\/\/ring20researchsupport.co.uk\/it\/uk-rare-epilepsies-together\/","title":{"rendered":"Epilessie rare nel Regno Unito insieme"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"6699\" class=\"elementor elementor-6699\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-36cb774 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"36cb774\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-4d90f5d\" data-id=\"4d90f5d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5e9ccd4 elementor-widget elementor-widget-heading\" data-id=\"5e9ccd4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">For all patient groups supporting those living with rare and complex epilepsies <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-122e8bd elementor-widget elementor-widget-text-editor\" data-id=\"122e8bd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Living with difficult to control (refractory) epilepsy and its commonly associated comorbidities presents many challenges for the individual and their families. Through participation in EpiCARE and the Rare Epilepsy Network (REN) Ring20 have become aware that whilst there may be many different causes for the seizures, we all share in common unmet needs. As individual charities we currently work to address those needs quite separately &#8211; just think what impact we could have if we got together?<\/p><p>The aim of UKRET is to bring together like-minded charities and support groups<strong> in the UK<\/strong> to see how we might work more collaboratively to support our rare and complex epilepsy communities <strong>on a national level<\/strong> to have an even bigger impact.<\/p><p>Together we can seek to raise greater awareness through educating clinicians, researchers, academics, policymakers, payers, social care and more in the needs of our <strong>shared community<\/strong>, with a goal of improving outcomes and overall quality of life for individuals and their families.<\/p><p>If your charity or organisation would like to join our group, contact Allison using the form below.\u00a0<\/p><p>We would also love to hear from any individual or company that would like to collaborate with us and help us in our work:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c37b151 elementor-button-align-stretch elementor-widget elementor-widget-form\" data-id=\"c37b151\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;step_next_label&quot;:&quot;Next&quot;,&quot;step_previous_label&quot;:&quot;Previous&quot;,&quot;button_width&quot;:&quot;100&quot;,&quot;step_type&quot;:&quot;number_text&quot;,&quot;step_icon_shape&quot;:&quot;circle&quot;}\" data-widget_type=\"form.default\">\n\t\t\t\t\t\t\t<form class=\"elementor-form\" method=\"post\" name=\"UK RET enquiries\" aria-label=\"UK RET enquiries\">\n\t\t\t<input type=\"hidden\" name=\"post_id\" value=\"6699\"\/>\n\t\t\t<input type=\"hidden\" name=\"form_id\" value=\"c37b151\"\/>\n\t\t\t<input type=\"hidden\" name=\"referer_title\" value=\"UK Rare Epilepsies Together - Ring20 Research and Support UK CIO\" \/>\n\n\t\t\t\t\t\t\t<input type=\"hidden\" name=\"queried_id\" value=\"6699\"\/>\n\t\t\t\n\t\t\t<div class=\"elementor-form-fields-wrapper elementor-labels-above\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-field-type-text elementor-field-group elementor-column elementor-field-group-name elementor-col-100\">\n\t\t\t\t\t\t\t\t\t\t\t\t<label for=\"form-field-name\" class=\"elementor-field-label\">\n\t\t\t\t\t\t\t\tYour Name\t\t\t\t\t\t\t<\/label>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<input size=\"1\" type=\"text\" name=\"form_fields[name]\" id=\"form-field-name\" class=\"elementor-field elementor-size-sm  elementor-field-textual\" placeholder=\"First Name and Surname\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<div class=\"elementor-field-type-text elementor-field-group elementor-column elementor-field-group-field_375ba88 elementor-col-100\">\n\t\t\t\t\t\t\t\t\t\t\t\t<label for=\"form-field-field_375ba88\" class=\"elementor-field-label\">\n\t\t\t\t\t\t\t\tCharity\/Organisation represented\t\t\t\t\t\t\t<\/label>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<input size=\"1\" type=\"text\" name=\"form_fields[field_375ba88]\" id=\"form-field-field_375ba88\" class=\"elementor-field elementor-size-sm  elementor-field-textual\" placeholder=\"Name of the organisation you represent\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<div class=\"elementor-field-type-text elementor-field-group elementor-column elementor-field-group-field_7ebcf7c elementor-col-100\">\n\t\t\t\t\t\t\t\t\t\t\t\t<label for=\"form-field-field_7ebcf7c\" class=\"elementor-field-label\">\n\t\t\t\t\t\t\t\tJob Title\t\t\t\t\t\t\t<\/label>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<input size=\"1\" type=\"text\" name=\"form_fields[field_7ebcf7c]\" id=\"form-field-field_7ebcf7c\" class=\"elementor-field elementor-size-sm  elementor-field-textual\" placeholder=\"What&#039;s your role in the organisation?\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<div class=\"elementor-field-type-email elementor-field-group elementor-column elementor-field-group-email elementor-col-100 elementor-field-required\">\n\t\t\t\t\t\t\t\t\t\t\t\t<label for=\"form-field-email\" class=\"elementor-field-label\">\n\t\t\t\t\t\t\t\tEmail\t\t\t\t\t\t\t<\/label>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<input size=\"1\" type=\"email\" name=\"form_fields[email]\" id=\"form-field-email\" class=\"elementor-field elementor-size-sm  elementor-field-textual\" placeholder=\"Email\" required=\"required\">\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<div class=\"elementor-field-type-textarea elementor-field-group elementor-column elementor-field-group-message elementor-col-100\">\n\t\t\t\t\t\t\t\t\t\t\t\t<label for=\"form-field-message\" class=\"elementor-field-label\">\n\t\t\t\t\t\t\t\tMessage\t\t\t\t\t\t\t<\/label>\n\t\t\t\t\t\t<textarea class=\"elementor-field-textual elementor-field  elementor-size-sm\" name=\"form_fields[message]\" id=\"form-field-message\" rows=\"4\" placeholder=\"Please tell us why you are interested in joining our collaborative\"><\/textarea>\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<div class=\"elementor-field-group elementor-column elementor-field-type-submit elementor-col-100 e-form__buttons\">\n\t\t\t\t\t<button class=\"elementor-button elementor-size-sm\" type=\"submit\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Send<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/button>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/form>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f4e92ab elementor-widget elementor-widget-text-editor\" data-id=\"f4e92ab\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Don&#8217;t forget to sign-up &#8211; places are strictly limited&#8230;<br \/><a href=\"https:\/\/betterundestandingepilepsies.eventbrite.co.uk\">https:\/\/betterundestandingepilepsies.eventbrite.co.uk<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-840308d elementor-widget elementor-widget-image\" data-id=\"840308d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"721\" height=\"1024\" src=\"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final-721x1024.png\" class=\"attachment-large size-large wp-image-10315\" alt=\"\" srcset=\"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final-721x1024.png 721w, https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final-211x300.png 211w, https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final-768x1090.png 768w, https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final-1082x1536.png 1082w, https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final-8x12.png 8w, https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final-600x852.png 600w, https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final.png 1409w\" sizes=\"(max-width: 721px) 100vw, 721px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-984595a\" data-id=\"984595a\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a465bae elementor-widget elementor-widget-image\" data-id=\"a465bae\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/03\/UK-RET-logos-1024x576.png\" class=\"attachment-large size-large wp-image-10509\" alt=\"\" srcset=\"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/03\/UK-RET-logos-1024x576.png 1024w, https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/03\/UK-RET-logos-300x169.png 300w, https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/03\/UK-RET-logos-768x432.png 768w, https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/03\/UK-RET-logos-1536x864.png 1536w, https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/03\/UK-RET-logos-18x10.png 18w, https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/03\/UK-RET-logos-600x338.png 600w, https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/03\/UK-RET-logos.png 1600w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f84a7f7 elementor-widget elementor-widget-heading\" data-id=\"f84a7f7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Introducing <br>UK Rare Epilepsies Together<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-089f99d elementor-widget elementor-widget-video\" data-id=\"089f99d\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtu.be\\\/U4ipu2v8jAQ&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6b96004 elementor-widget elementor-widget-heading\" data-id=\"6b96004\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Next meeting<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6c9c40e elementor-widget elementor-widget-text-editor\" data-id=\"6c9c40e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Our next call is on Tues 2nd May &#8217;23 12:30-1:30pm.<\/p><p>Email us if you haven&#8217;t received the Zoom invite.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8afc9df elementor-align-center elementor-widget elementor-widget-button\" data-id=\"8afc9df\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"mailto:hello@ukret.co.uk\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Contact Us<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1d2443f elementor-countdown--label-block elementor-widget elementor-widget-countdown\" data-id=\"1d2443f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"countdown.default\">\n\t\t\t\t\t\t\t<div data-expire-actions=\"[{&quot;type&quot;:&quot;message&quot;}]\" class=\"elementor-countdown-wrapper\" data-date=\"1690889400\">\n\t\t\t<div class=\"elementor-countdown-item\"><span class=\"elementor-countdown-digits elementor-countdown-days\"><\/span> <span class=\"elementor-countdown-label\">\u0623\u064a\u0627\u0645<\/span><\/div><div class=\"elementor-countdown-item\"><span class=\"elementor-countdown-digits elementor-countdown-hours\"><\/span> <span class=\"elementor-countdown-label\">\u0633\u0627\u0639\u0627\u062a<\/span><\/div>\t\t<\/div>\n\t\t\t\t\t\t<div class=\"elementor-countdown-expire--message\">\n\t\t\t\t\tOur next meeting date will be displayed here.\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-aeedd0a elementor-widget elementor-widget-heading\" data-id=\"aeedd0a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Key activities:<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ffaef75 elementor-widget elementor-widget-text-editor\" data-id=\"ffaef75\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<ol><li>Working with DWP on creating PIP assessment criteria specifically for rare epilepsies<\/li><li>Collectively presenting our unmet needs at a forthcoming UK event dedicated to rare epilepsies in Sept 2022.<\/li><\/ol>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a486d01 elementor-widget elementor-widget-text-editor\" data-id=\"a486d01\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<div><span style=\"font-size: 14px; color: var( --e-global-color-text ); font-family: var( --e-global-typography-text-font-family ), Sans-serif;\">Other sharing opportunities:<\/span><\/div><ol><li style=\"list-style-type: none;\"><ul><li>The way forward for CBMPs and general access to anti seizure medications<\/li><li>Genomics research for epilepsy diagnosis<\/li><li>Collective input to NICE guidelines for epilepsy<\/li><li>Exploring the potential of a collaborative rare epilepsies registry &#8211;<em> watch the presentation below<\/em><\/li><\/ul><\/li><\/ol>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a0adb5d elementor-widget elementor-widget-video\" data-id=\"a0adb5d\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtu.be\\\/-v9PgDwkYKQ&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-030140d elementor-widget elementor-widget-text-editor\" data-id=\"030140d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Recording of call 7th Feb 2023.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4ed50f2 elementor-widget elementor-widget-video\" data-id=\"4ed50f2\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtu.be\\\/aA1LWGVqJwA&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>For all patient groups supporting those living with rare and complex epilepsies Living with difficult to control (refractory) epilepsy and its commonly associated comorbidities presents many challenges for the individual and their families. Through participation in EpiCARE and the Rare Epilepsy Network (REN) Ring20 have become aware that whilst there may be many different causes [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-6699","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>UK Rare Epilepsies Together - Ring20 Research and Support UK CIO<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ring20researchsupport.co.uk\/it\/uk-rare-epilepsies-together\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"UK Rare Epilepsies Together - Ring20 Research and Support UK CIO\" \/>\n<meta property=\"og:description\" content=\"For all patient groups supporting those living with rare and complex epilepsies Living with difficult to control (refractory) epilepsy and its commonly associated comorbidities presents many challenges for the individual and their families. Through participation in EpiCARE and the Rare Epilepsy Network (REN) Ring20 have become aware that whilst there may be many different causes [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/ring20researchsupport.co.uk\/it\/uk-rare-epilepsies-together\/\" \/>\n<meta property=\"og:site_name\" content=\"Ring20 Research and Support UK CIO\" \/>\n<meta property=\"article:modified_time\" content=\"2023-05-25T09:35:12+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final-721x1024.png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Tempo di lettura stimato\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minuti\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/uk-rare-epilepsies-together\\\/\",\"url\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/uk-rare-epilepsies-together\\\/\",\"name\":\"UK Rare Epilepsies Together - Ring20 Research and Support UK CIO\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/uk-rare-epilepsies-together\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/uk-rare-epilepsies-together\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/wp-content\\\/uploads\\\/2023\\\/02\\\/Better-Understanding-Epilepsies-conference-2023-8-Final-721x1024.png\",\"datePublished\":\"2021-06-10T08:34:46+00:00\",\"dateModified\":\"2023-05-25T09:35:12+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/uk-rare-epilepsies-together\\\/#breadcrumb\"},\"inLanguage\":\"it-IT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/ring20researchsupport.co.uk\\\/uk-rare-epilepsies-together\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/uk-rare-epilepsies-together\\\/#primaryimage\",\"url\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/wp-content\\\/uploads\\\/2023\\\/02\\\/Better-Understanding-Epilepsies-conference-2023-8-Final-721x1024.png\",\"contentUrl\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/wp-content\\\/uploads\\\/2023\\\/02\\\/Better-Understanding-Epilepsies-conference-2023-8-Final-721x1024.png\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/uk-rare-epilepsies-together\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"UK Rare Epilepsies Together\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/#website\",\"url\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/\",\"name\":\"Ring20 Research and Support UK CIO\",\"description\":\"Promoting research, education and continuous support to end undiagnosed and misdiagnosed Ring20 epilepsy\",\"publisher\":{\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"it-IT\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/#organization\",\"name\":\"Ring20 Research and Support CIO\",\"url\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/wp-content\\\/uploads\\\/2021\\\/03\\\/Ring20_logo-high-resolution.jpg\",\"contentUrl\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/wp-content\\\/uploads\\\/2021\\\/03\\\/Ring20_logo-high-resolution.jpg\",\"width\":2357,\"height\":666,\"caption\":\"Ring20 Research and Support CIO\"},\"image\":{\"@id\":\"https:\\\/\\\/ring20researchsupport.co.uk\\\/#\\\/schema\\\/logo\\\/image\\\/\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Epilessie rare nel Regno Unito insieme - Ring20 Research and Support UK CIO","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/ring20researchsupport.co.uk\/it\/uk-rare-epilepsies-together\/","og_locale":"it_IT","og_type":"article","og_title":"UK Rare Epilepsies Together - Ring20 Research and Support UK CIO","og_description":"For all patient groups supporting those living with rare and complex epilepsies Living with difficult to control (refractory) epilepsy and its commonly associated comorbidities presents many challenges for the individual and their families. Through participation in EpiCARE and the Rare Epilepsy Network (REN) Ring20 have become aware that whilst there may be many different causes [&hellip;]","og_url":"https:\/\/ring20researchsupport.co.uk\/it\/uk-rare-epilepsies-together\/","og_site_name":"Ring20 Research and Support UK CIO","article_modified_time":"2023-05-25T09:35:12+00:00","og_image":[{"url":"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final-721x1024.png","type":"","width":"","height":""}],"twitter_card":"summary_large_image","twitter_misc":{"Tempo di lettura stimato":"2 minuti"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/ring20researchsupport.co.uk\/uk-rare-epilepsies-together\/","url":"https:\/\/ring20researchsupport.co.uk\/uk-rare-epilepsies-together\/","name":"Epilessie rare nel Regno Unito insieme - Ring20 Research and Support UK CIO","isPartOf":{"@id":"https:\/\/ring20researchsupport.co.uk\/#website"},"primaryImageOfPage":{"@id":"https:\/\/ring20researchsupport.co.uk\/uk-rare-epilepsies-together\/#primaryimage"},"image":{"@id":"https:\/\/ring20researchsupport.co.uk\/uk-rare-epilepsies-together\/#primaryimage"},"thumbnailUrl":"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final-721x1024.png","datePublished":"2021-06-10T08:34:46+00:00","dateModified":"2023-05-25T09:35:12+00:00","breadcrumb":{"@id":"https:\/\/ring20researchsupport.co.uk\/uk-rare-epilepsies-together\/#breadcrumb"},"inLanguage":"it-IT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/ring20researchsupport.co.uk\/uk-rare-epilepsies-together\/"]}]},{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/ring20researchsupport.co.uk\/uk-rare-epilepsies-together\/#primaryimage","url":"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final-721x1024.png","contentUrl":"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2023\/02\/Better-Understanding-Epilepsies-conference-2023-8-Final-721x1024.png"},{"@type":"BreadcrumbList","@id":"https:\/\/ring20researchsupport.co.uk\/uk-rare-epilepsies-together\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/ring20researchsupport.co.uk\/"},{"@type":"ListItem","position":2,"name":"UK Rare Epilepsies Together"}]},{"@type":"WebSite","@id":"https:\/\/ring20researchsupport.co.uk\/#website","url":"https:\/\/ring20researchsupport.co.uk\/","name":"Ring20 Research and Support UK CIO","description":"Promuovere la ricerca, l&#039;istruzione e il supporto continuo per porre fine all&#039;epilessia Ring20 non diagnosticata e mal diagnosticata","publisher":{"@id":"https:\/\/ring20researchsupport.co.uk\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/ring20researchsupport.co.uk\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"it-IT"},{"@type":"Organization","@id":"https:\/\/ring20researchsupport.co.uk\/#organization","name":"CIO di ricerca e supporto Ring20","url":"https:\/\/ring20researchsupport.co.uk\/","logo":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/ring20researchsupport.co.uk\/#\/schema\/logo\/image\/","url":"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2021\/03\/Ring20_logo-high-resolution.jpg","contentUrl":"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2021\/03\/Ring20_logo-high-resolution.jpg","width":2357,"height":666,"caption":"Ring20 Research and Support CIO"},"image":{"@id":"https:\/\/ring20researchsupport.co.uk\/#\/schema\/logo\/image\/"}}]}},"_links":{"self":[{"href":"https:\/\/ring20researchsupport.co.uk\/it\/wp-json\/wp\/v2\/pages\/6699","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ring20researchsupport.co.uk\/it\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/ring20researchsupport.co.uk\/it\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/ring20researchsupport.co.uk\/it\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/ring20researchsupport.co.uk\/it\/wp-json\/wp\/v2\/comments?post=6699"}],"version-history":[{"count":5,"href":"https:\/\/ring20researchsupport.co.uk\/it\/wp-json\/wp\/v2\/pages\/6699\/revisions"}],"predecessor-version":[{"id":10891,"href":"https:\/\/ring20researchsupport.co.uk\/it\/wp-json\/wp\/v2\/pages\/6699\/revisions\/10891"}],"wp:attachment":[{"href":"https:\/\/ring20researchsupport.co.uk\/it\/wp-json\/wp\/v2\/media?parent=6699"}],"curies":[{"name":"parola chiave","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}