1.0Ring20 の調査とサポート 英国の CIOhttps://ring20researchsupport.co.uk/jaAlisonhttps://ring20researchsupport.co.uk/ja/author/alison/rich600338<blockquote class="wp-embedded-content" data-secret="EMwaUwS3N1"><a href="https://ring20researchsupport.co.uk/ja/for-families/global-patient-map-2/">r(20) グローバル患者マップ</a></blockquote><iframe sandbox="allow-scripts" security="restricted" src="https://ring20researchsupport.co.uk/ja/for-families/global-patient-map-2/embed/#?secret=EMwaUwS3N1" width="600" height="338" title="“「r(20) グローバル患者マップ」 — Ring20 Research and Support UK CIO" data-secret="EMwaUwS3N1" frameborder="0" marginwidth="0" marginheight="0" scrolling="no" class="wp-embedded-content"></iframe><script> /*! This file is auto-generated */ !function(d,l){"use strict";l.querySelector&&d.addEventListener&&"undefined"!=typeof URL&&(d.wp=d.wp||{},d.wp.receiveEmbedMessage||(d.wp.receiveEmbedMessage=function(e){var t=e.data;if((t||t.secret||t.message||t.value)&&!/[^a-zA-Z0-9]/.test(t.secret)){for(var s,r,n,a=l.querySelectorAll('iframe[data-secret="'+t.secret+'"]'),o=l.querySelectorAll('blockquote[data-secret="'+t.secret+'"]'),c=new RegExp("^https?:$","i"),i=0;i<o.length;i++)o[i].style.display="none";for(i=0;i<a.length;i++)s=a[i],e.source===s.contentWindow&&(s.removeAttribute("style"),"height"===t.message?(1e3<(r=parseInt(t.value,10))?r=1e3:~~r<200&&(r=200),s.height=r):"link"===t.message&&(r=new URL(s.getAttribute("src")),n=new URL(t.value),c.test(n.protocol))&&n.host===r.host&&l.activeElement===s&&(d.top.location.href=t.value))}},d.addEventListener("message",d.wp.receiveEmbedMessage,!1),l.addEventListener("DOMContentLoaded",function(){for(var e,t,s=l.querySelectorAll("iframe.wp-embedded-content"),r=0;r<s.length;r++)(t=(e=s[r]).getAttribute("data-secret"))||(t=Math.random().toString(36).substring(2,12),e.src+="#?secret="+t,e.setAttribute("data-secret",t)),e.contentWindow.postMessage({message:"ready",secret:t},"*")},!1)))}(window,document); //# sourceURL=https://ring20researchsupport.co.uk/wp-includes/js/wp-embed.min.js </script>As a patient support group we are putting r(20) on the map – quite literally! We are plotting known cases of r(20) around the world onto a Google map to highlight the number of cases and their general location. We have 2 versions of the map: PUBLIC – an anonymous map of known cases to show the reach of our support group including to  family members,  Healthcare Professionals, funders and researchers PRIVATE – for Ring20 family members only (consent required) to facilitate connections between Ring20 families locally, nationally and internationally If you would like to be added to either of our Ring20 maps, please complete the form here. Complete Form […]