{"version":"1.0","provider_name":"Ring20 \u306e\u8abf\u67fb\u3068\u30b5\u30dd\u30fc\u30c8 \u82f1\u56fd\u306e CIO","provider_url":"https:\/\/ring20researchsupport.co.uk\/ja","author_name":"Alison","author_url":"https:\/\/ring20researchsupport.co.uk\/ja\/author\/alison\/","title":"Griffin's story - Ring20 Research and Support UK CIO","type":"rich","width":600,"height":338,"html":"<blockquote class=\"wp-embedded-content\" data-secret=\"RLe4XlGUgW\"><a href=\"https:\/\/ring20researchsupport.co.uk\/ja\/story\/griffins-story\/\">\u30b0\u30ea\u30d5\u30a3\u30f3\u306e\u7269\u8a9e<\/a><\/blockquote><iframe sandbox=\"allow-scripts\" security=\"restricted\" src=\"https:\/\/ring20researchsupport.co.uk\/ja\/story\/griffins-story\/embed\/#?secret=RLe4XlGUgW\" width=\"600\" height=\"338\" title=\"\u201c\u300c\u30b0\u30ea\u30d5\u30a3\u30f3\u306e\u7269\u8a9e\u300d \u2014 Ring20\u30ea\u30b5\u30fc\u30c1\uff06\u30b5\u30dd\u30fc\u30c8\u82f1\u56fdCIO\" data-secret=\"RLe4XlGUgW\" frameborder=\"0\" marginwidth=\"0\" marginheight=\"0\" scrolling=\"no\" class=\"wp-embedded-content\"><\/iframe><script>\n\/*! This file is auto-generated *\/\n!function(d,l){\"use strict\";l.querySelector&&d.addEventListener&&\"undefined\"!=typeof URL&&(d.wp=d.wp||{},d.wp.receiveEmbedMessage||(d.wp.receiveEmbedMessage=function(e){var t=e.data;if((t||t.secret||t.message||t.value)&&!\/[^a-zA-Z0-9]\/.test(t.secret)){for(var s,r,n,a=l.querySelectorAll('iframe[data-secret=\"'+t.secret+'\"]'),o=l.querySelectorAll('blockquote[data-secret=\"'+t.secret+'\"]'),c=new RegExp(\"^https?:$\",\"i\"),i=0;i<o.length;i++)o[i].style.display=\"none\";for(i=0;i<a.length;i++)s=a[i],e.source===s.contentWindow&&(s.removeAttribute(\"style\"),\"height\"===t.message?(1e3<(r=parseInt(t.value,10))?r=1e3:~~r<200&&(r=200),s.height=r):\"link\"===t.message&&(r=new URL(s.getAttribute(\"src\")),n=new URL(t.value),c.test(n.protocol))&&n.host===r.host&&l.activeElement===s&&(d.top.location.href=t.value))}},d.addEventListener(\"message\",d.wp.receiveEmbedMessage,!1),l.addEventListener(\"DOMContentLoaded\",function(){for(var e,t,s=l.querySelectorAll(\"iframe.wp-embedded-content\"),r=0;r<s.length;r++)(t=(e=s[r]).getAttribute(\"data-secret\"))||(t=Math.random().toString(36).substring(2,12),e.src+=\"#?secret=\"+t,e.setAttribute(\"data-secret\",t)),e.contentWindow.postMessage({message:\"ready\",secret:t},\"*\")},!1)))}(window,document);\n\/\/# sourceURL=https:\/\/ring20researchsupport.co.uk\/wp-includes\/js\/wp-embed.min.js\n<\/script>","thumbnail_url":"https:\/\/ring20researchsupport.co.uk\/wp-content\/uploads\/2025\/02\/IMG_6289-scaled.jpg","thumbnail_width":2560,"thumbnail_height":1707,"description":"Amy from the USA is Griffin&#8217;s mother. Here she tells us their journey to diagnosis, encompassing multiple hospitals and treatments, and the impact living with r(20) syndrome is having on the whole family. Thriving to surviving Griffin was a very active, silly, and caring 5.5-year-old boy. He had just finished Pre-K and was hitting many milestones; he was thriving. Early in the summer of 2023, we noticed a short episode where Griffin didn\u2019t respond to us and seemed a bit limp. When he came out of it laughing, we thought he was just playing. Two days later, Griffin had a noticeable absence seizure. He emerged from it crying and distraught, [&hellip;]"}