{"id":13442,"date":"2026-08-11T11:16:06","date_gmt":"2026-08-11T10:16:06","guid":{"rendered":"https:\/\/ring20researchsupport.co.uk\/?page_id=13442"},"modified":"2026-08-13T09:34:32","modified_gmt":"2026-08-13T08:34:32","slug":"flo_project","status":"publish","type":"page","link":"https:\/\/ring20researchsupport.co.uk\/nb\/for-families\/flo_project\/","title":{"rendered":"Familiekontaktprosjekt"},"content":{"rendered":"
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M\u00e5let med v\u00e5rt tre\u00e5rige familiekontaktprosjekt er \u00e5 tilby skreddersydd, rettidig og passende st\u00f8tte for \u00e5 forbedre livskvaliteten til familier som lever med Ring20 \u2013 en sv\u00e6rt sjelden form for epilepsi som ofte feildiagnostiseres.<\/h3>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\nOm familiekontaktprosjektet<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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Families Liaison Project er et spennende nytt initiativ fra Ring20 Research & Support, og tilbyr personer som lever med Ring20-epilepsi (og deres familier) skreddersydd st\u00f8tte fra v\u00e5r familiekontaktansvarlig, Sarah.<\/span>\u00a0\u00a0<\/span><\/p>

Sarah tilbyr personlig hjelp til de som lever med denne ultralyden<\/span>\u2011<\/span>sjelden form for epilepsi, noe som sikrer at familier f\u00e5r den st\u00f8tten de fortjener fra noen med sterk forst\u00e5else av Ring20-epilepsi. Ring20 er fortsatt under behandling<\/span>\u2011<\/span>unders\u00f8kt og ofte misforst\u00e5tt, s\u00e5 det \u00e5 ha dedikert veiledning kan utgj\u00f8re en reell forskjell.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t

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Tjenester tilgjengelig gjennom Familiekontaktprosjektet<\/h2>\t\t\t\t<\/div>\n\t\t
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Ved siden av\u00a0Ring20 Familiekonferanse<\/a>e, det finnes <\/span>flere<\/span> St\u00f8ttetjenester tilgjengelig gjennom Familiekontaktprosjektet. Disse tjenestene inkluderer:<\/span><\/span>\u00a0<\/span><\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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\n\t\t\t\t\t\t\n\t\t\t\t\t\t\tEn-til-en-st\u00f8tte\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\tSt\u00f8tte til \u00e5 identifisere medisinske utfordringer og l\u00f8sninger for \u00e5 forbedre generell helse og velv\u00e6re\n
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\nVeiledning i navigering gjennom komplekse systemer, for eksempel helsevesenet, sosialtjenestene eller skolesystemene, for \u00e5 sikre best mulig resultat\n
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\n\u00c5 tilby trygg, emosjonell st\u00f8tte og lyttetjeneste n\u00e5r man er overveldet eller tilpasser seg betydelige livsutfordringer\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\n\t\t\t\t\t\t\tGruppest\u00f8tte og kameratskap\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\tIntrodusere enkeltpersoner og familier med andre innenfor Ring20 epilepsimilj\u00f8et, basert p\u00e5 interesser, lignende livserfaringer, bostedsland osv. for \u00e5 danne nye st\u00f8ttenettverk.\u00a0\n
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\n\u00c5 holde enkeltpersoner og familier informert om kommende sosiale arrangementer, b\u00e5de fysisk og virtuelt, for \u00e5 redusere isolasjon og ensomhet i Ring20-samfunnet. Arrangementene har vist seg \u00e5 utvikle positive vennskap, bidra til selvtillit og hjelpe enkeltpersoner og familier til \u00e5 f\u00f8le seg tilknyttet og st\u00f8ttet av et fellesskap som forst\u00e5r det.\u00a0\u00a0\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\n\t\t\t\t\t\t\tSkilting og p\u00e5virkningsarbeid\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\tHjelp med \u00e5 fylle ut skjemaer for \u00e5 forhindre utbrenthet\n
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\nVeiledning til andre organisasjoner og veldedige organisasjoner for \u00e5 gi ytterligere st\u00f8tte for \u00e5 m\u00f8te individuelle og familiemessige behov\n
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\nSt\u00f8tte enkeltpersoner og familier med \u00e5 utforske sine rettigheter, alternativer og uttrykte \u00f8nsker for \u00e5 forbedre egenomsorg, slik at behov og grenser respekteres.\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\n\t\t\t\t\t\t\tRing20 Ressurser og muligheter\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h3>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\tHolder enkeltpersoner og familier informert om relevante tjenester, sosiale arrangementer og muligheter som er tilgjengelige hos Ring20 Research & Support\n
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\nInformere enkeltpersoner og familier om eventuelle passende kommende forskningsmuligheter innen Ring20-epilepsifeltet for \u00e5 oppmuntre til deltakelse, slik at man som en kollektiv forbedring, bevissthet og forst\u00e5else av denne ultrasjeldne sykdommen kan forbedres for fremtidige generasjoner.\t\t\t\t\t<\/p>\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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M\u00f8t Sarah, Ring20s familiekontaktperson<\/h3>\t\t\t\t<\/div>\n\t\t\t\t
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Hei, jeg heter Sarah, og jeg er familiekontaktperson for Ring20 Research & Support.<\/span><\/b>\u00a0<\/span><\/p>

Jeg har bred erfaring innen r\u00e5dgivning og st\u00f8tte<\/span>\u2011fokuserte roller, spesielt innenfor NHS, hvor jeg har jobbet tett med mennesker for \u00e5 hjelpe dem med \u00e5 navigere utfordringer, f\u00e5 tilgang til tjenester og f\u00f8le seg st\u00f8ttet. Jeg har st\u00f8ttet individer fra alle samfunnslag, inkludert de som st\u00e5r overfor komplekse helsetilstander, funksjonshemminger, sosiale ulikheter og postnummerproblemer.<\/span>\u2011lotteribarrierer, og jeg gleder meg til \u00e5 ta med meg denne erfaringen inn i Ring20s familiekontaktprosjekt.<\/span>\u00a0<\/span><\/p>

M\u00e5let mitt er \u00e5 skape positive opplevelser og resultater for enkeltpersoner og familier som lever med Ring20-epilepsi. Jeg \u00f8nsker at familier skal f\u00f8le seg h\u00f8rt, st\u00f8ttet og tilkoblet, og jeg vil samarbeide med dem for \u00e5 f\u00e5 dette til. Jeg vil ogs\u00e5 samarbeide med Allison og det bredere Ring20-teamet for \u00e5 \u00f8ke bevisstheten og forst\u00e5elsen av denne ultralyden.<\/span>\u2011sjelden form for epilepsi innen medisinske og forskningsfelt, slik at alle (uansett hvor de bor) kan f\u00e5 rettidig diagnose og st\u00f8tte.<\/span>\u00a0<\/span><\/p>

Hvis du har noen sp\u00f8rsm\u00e5l, uansett hvor store eller sm\u00e5 de er, ikke n\u00f8l med \u00e5 ta kontakt. Jeg er alltid her for \u00e5 lytte og hjelpe der jeg kan.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tKONTAKT SARAH HER<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tLES SARAHS BLOGGINNLEGG<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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En stor takk til bidragsyterne som har st\u00f8ttet arbeidet v\u00e5rt
for \u00e5 gj\u00f8re dette prosjektet mulig:<\/h2>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t
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Finansier fremtiden for st\u00f8tte til ultrasjeldne epilepsitilfeller<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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V\u00e5r visjon er at Families Liaison Project skal fortsette utover de f\u00f8rste tre \u00e5rene, og sikre at fremtidige generasjoner f\u00e5r den st\u00f8tten, omsorgen og fellesskapet de trenger mens de lever med en sv\u00e6rt sjelden form for epilepsi. Hvis du er en bidragsyter, en bedrift eller til og med en enkeltperson som \u00f8nsker \u00e5 samle inn penger for \u00e5 st\u00f8tte Families Liaison Project, kan du ta kontakt nedenfor.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tKlikk her for \u00e5 komme i kontakt<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Leter du etter mer informasjon?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
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Last ned v\u00e5rt pdf-informasjonsark p\u00e5 Ring20 eller klikk her for m\u00e5ter \u00e5 kontakte oss p\u00e5<\/a>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tLast ned pdf-informasjonsbladet<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

The aim of our three-year Families Liaison Project is to provide bespoke, timely and appropriate support to improve the quality of life for families living with Ring20 – an ultra-rare form of epilepsy that is often misdiagnosed. About the Families Liaison Project An exciting new initiative at Ring20 Research & Support, the Families Liaison Project […]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":74,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-13442","page","type-page","status-publish","hentry"],"yoast_head":"\nFamilies Liaison Project - Ring20 Research and Support UK CIO<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ring20researchsupport.co.uk\/nb\/for-families\/flo_project\/\" \/>\n<meta property=\"og:locale\" content=\"nb_NO\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Families Liaison Project - Ring20 Research and Support UK CIO\" \/>\n<meta property=\"og:description\" content=\"The aim of our three-year Families Liaison Project is to provide bespoke, timely and appropriate support to improve the quality of life for families living with Ring20 – an ultra-rare form of epilepsy that is often misdiagnosed. 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