{"id":11931,"date":"2024-10-02T19:53:19","date_gmt":"2024-10-02T18:53:19","guid":{"rendered":"https:\/\/ring20researchsupport.co.uk\/?p=11931"},"modified":"2024-10-02T20:12:47","modified_gmt":"2024-10-02T19:12:47","slug":"highlights-from-brighton-race-day","status":"publish","type":"post","link":"https:\/\/ring20researchsupport.co.uk\/nb\/2024\/10\/highlights-from-brighton-race-day\/","title":{"rendered":"H\u00f8ydepunkter fra Brighton Race Day"},"content":{"rendered":"\t\t
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We asked our team of volunteers to tell us their personal highlights from the day,
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When big Otsi met little Otsi...<\/h4><\/div><\/figcaption><\/div><\/div>
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Fun with families<\/h4><\/div><\/figcaption><\/div><\/div>
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Did you find Otsi in our continents game?<\/h4><\/div><\/figcaption><\/div><\/div><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\tGreat day. Really good to catch up with people I knew and lovely to meet new families. Also met VIP\u2019s from research and other medical professionals. It\u2019s good to know someone will be thinking about Ring20. \t\t\t<\/p>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\tYvonne, Ring20 Champion<\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\tAfter months of planning, it was a joy to wake up in Brighton to find the weather had smiled on us for our charity raceday! I arrived early at the racecourse to find a friendly team eager to help us, and a stunning view of the finish line from the hospitality suite. It was fun to finally meet other volunteers in person, all excited to get started, and looking great in our purple Ring20 t-shirts. As well as information and leaflets about r(20) and what Ring20 does as a charity, we had sweets, chocolates and a \u2018find the continents\u2019 game for children featuring our Superhero mascot Otsi. My son was pleased to meet Elin dressed as Otsi to show her his very own Otsi doll! The best part of the day was that many people came up to me to speak about the charity, about their own experiences of epilepsy, and how well the day seemed to be going \u2013 and the owner of a winning racehorse who gave us \u00a340 for the pot! It was a fun day out, and a great way to spread the word about r(20) and Ring20!\t\t\t<\/p>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\tBelinda, Bid Writer (and organiser for this event)<\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\tIt was an absolute honour to be representing Ring20 at the racecourse, where we had the opportunity to raise more awareness on r(20) and rare epilepsies - which many people are not aware of. It was a great day, with a lot of great people whom I had the pleasure of meeting, and although we were not familiar with each other one thing bought us together and it was the spirit to raise more awareness and bring changes for patients struggling with rare conditions who have been overlooked. It was a pleasure of mine to have been part of a family that genuinely wants to bring positive changes \ud83d\ude42\t\t\t<\/p>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\tAash, intern 2023\/24<\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\tThe race-day was a great opportunity to fundraise and raise awareness of r(20), in a family-friendly atmosphere. It was my first day working as an intern with Allison and the rest of the Ring20 team, so you could say I had a 'baptism of fire'. My highlights of the day included dressing up as Otsi, the Ring20 mascot, and interacting with the children, awarding prizes to the race winner and judging the 'Best Turned-Out Horse', which was extremely difficult, as all the horses looked amazing. This event also allowed me to meet Allison and the Ring20 team in-person, helping to foster strong relationships that are invaluable when working in a team.\t\t\t<\/p>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\tElin, intern 2024\/25<\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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\n\t\t\t\tAs a university student studying Neuroscience, I never imagined that a chance encounter would lead me into the world of horse racing and a tight-knit community fighting to raise awareness for a rare epilepsy condition called Ring Chromosome 20 Syndrome, or r(20). My involvement began when I learned about Ring20 Research and Support\u2014a charity dedicated to helping those living with this rare form of epilepsy. Shocked that I hadn\u2019t come across the condition before in my studies, I was compelled to get involved, and volunteering at their charity horse racing day in Brighton felt like the perfect opportunity.\nThe day was one I\u2019ll never forget. Set against the scenic backdrop of Brighton\u2019s racecourse, the atmosphere buzzed with excitement and anticipation. As a volunteer, my main task was helping with fundraising efforts, guiding guests, and spreading awareness about r(20). But what struck me most was the incredible community I encountered.\nI met families who live with the daily challenges of r(20), each with their own unique story of courage and resilience. From parents of young children to adults managing seizures, every conversation left me more inspired. The bond between these families was palpable; they weren\u2019t just attendees\u2014they were a family brought together by the shared mission of fighting this rare disease.\t\t\t<\/p>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\tKallif, Step Into The Ring support<\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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And so it begins...<\/h4><\/div><\/figcaption><\/div><\/div>
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The race line up<\/h4><\/div><\/figcaption><\/div><\/div>
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Over 1,000 people turned out for the racing<\/h4><\/div><\/figcaption><\/div><\/div>
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The thrill of the race<\/h4><\/div><\/figcaption><\/div><\/div>
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Being interviewed LIVE on Sky Sports Racing<\/h4><\/div><\/figcaption><\/div><\/div>
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Raising awareness at the racecourse<\/h4><\/div><\/figcaption><\/div><\/div><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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\n\t\t\t\tBrighton was easily one of my favourite trips. Starting the morning with a delicious breakfast (Legends!!!) with some friends including Kallif, Allison, Elin and David. I also had the pleasure of meeting some new people who I felt I got on very well with, including Ash and Elin. We worked together at the racecourse to promote Ring20 Research Support UK. The next day I went to the same place for breakfast and it was incredible once again. I decided to go to the aquarium having a shark and sea turtle swim over my head. An incredible weekend but my favourite part was seeing my friends from the charity (Ring20). \t\t\t<\/p>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\tDale, Trustee & Ring20 Champion<\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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\n\t\t\t\tRace 3 has to be a forever memory for me, the Ring20 Memorial Stakes titled in memory of Ella, Sebastian and Rachel - our 3 young people who sadly lost their lives to r(20). On this day we remember you...\t\t\t<\/p>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\tAllison, CEO<\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tclick here to read Ella, Sebastian and Rachel's stories<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Race 3 race winners<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\tBrighton race day was good fun! I spent much of the day in our hospitality box with our VIP guests. We had a great view of the racecourse and interrupted our interesting conversations to watch each race. Our guests all had a different interest and perspective regarding r(20). Not only was it an opportunity for Ring20 staff and volunteers to catch up with each of them, but they were also able to share interesting ideas with one another. We hope that some great ideas regarding research and understanding of r(20) syndrome will develop from here. Our volunteers worked really hard before, during and after the event to ensure that it went smoothly and that everyone had a good time. A special thank you to our sponsors for enabling us to host this excellent event!\n\t\t\t<\/p>\n\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\t\t\tLydia, Trustee (Chair)<\/cite>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/blockquote>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Meaningful discussions with our VIP guests<\/h4><\/div><\/figcaption><\/div><\/div>
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Our VIPs<\/h4><\/div><\/figcaption><\/div><\/div><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Relive the day by watching our highlights videos<\/h2>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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\n\t\t\t\tThanks to our wonderful team of volunteers, who worked so hard and without whom we couldn't have done this event.\t\t\t<\/p>\n\t\t\t\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

We asked our team of volunteers to tell us their personal highlights from the day,here’s what they said… When big Otsi met little Otsi… Fun with families Did you find Otsi in our continents game? Great day. Really good to catch up with people I knew and lovely to meet new families. Also met VIP\u2019s […]<\/p>\n","protected":false},"author":3,"featured_media":11933,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[17],"tags":[],"class_list":["post-11931","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog"],"yoast_head":"\nHighlights from Brighton Race Day - Ring20 Research and Support UK CIO<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ring20researchsupport.co.uk\/nb\/2024\/10\/highlights-from-brighton-race-day\/\" \/>\n<meta property=\"og:locale\" content=\"nb_NO\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Highlights from Brighton Race Day - Ring20 Research and Support UK CIO\" \/>\n<meta property=\"og:description\" content=\"We asked our team of volunteers to tell us their personal highlights from the day,here’s what they said… When big Otsi met little Otsi… Fun with families Did you find Otsi in our continents game? 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