r(20) diagnosis and access to CBD_9

r(20) diagnosis and CBD survey

We recently launched a short survey across our r(20) member families, to find out a little about their diagnosis, seizures and whether tehy have tried any form of medicinal cannabis treatment. Read th

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Mentoring opportunities

We have some exciting short-term mentoring opportunities at Ring20. Take a look: Digital Mentor Are you based in the UK? Have you been furloughed as a result of COVID-19? Do you have some spar

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Our latest Newsletter has landed!

Read our latest Newsletter jam-packed with information on our research projects and other activities. Printed copies have been posted to all members and supporters on our mailing list. Newsletter #

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COVID-19 and r(20) syndrome

A message from Dr Sophia Varadkar (Ring20 Medical Advisor) Dear Ring 20 Community We find ourselves in very exceptional times. Some of you have asked if there is any particular advice for you arou

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Help us create an r(20) Patient Statement

Dave our newest volunteer and Allison are attending a ‘Think Research!’ event in March organised by NIHR. We've been asked to produce a Ring20 ‘Patient Statement' to help shape future rare-disea

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Student Voice Competition 2019

At the end of 2019 Findacure in conjunction with Medics 4 Rare Diseases (M4RD) launched their annual Student Voice essay competition. Here at Ring20 we were lucky to be paired with a medical student,

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r(20) Comic Character

It's time to get creative and be a part of our patient information booklet! As you are probably already aware, following on from our workshop on 23 November we are now looking for our own character t

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r(20) Families Conference 2020

SAVE THE DATE! 9-11th Oct 2020 Join us for our r(20) families conference weekend in Brighton, UK. More details coming soon....

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Ready for Big Give Christmas Challenge?

Countdown to double donations week commencing 3rd Dec '19. Find out more about our Ring20 Campaign in The Big Give Christmas Challenge here and see how you can participate.

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Ring20 in the news!

Allison was interviewed by BBC news reporter Richard Westcott on 23rd Sept 19 whilst attending the CRDN RAREsummit19 at the Wellcome Genome Campus. Watch the interview here:

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