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Here are a couple of videos from our r(20) families across the world for rare disease day:
Individuals with r(20) syndrome (in UK)
At Ring20, it has come to our attention that some individuals diagnosed with r(20) syndrome are not being offered the COVID-19 vaccine as part of priority grou
NEW!! We are excited to present two new information leaflets, one for parent/carers and one specifically for healthcare professionals:
r(20) information leaflets for healthcare professionals
Watch our Ring20 AGM 2020 and BIG ANNOUNCEMENT video here:
We're very proud to present to you our r(20) patient information booklets, comic style, created by families, for families.
This is the culmination of over a year of hard work and we hope that you l
Read our latest newsletter #9 to see what's changing at Ring20 and what we have planned for the coming months ahead.
Your feedback is important to us and will help us shape what Ring20 looks like in the future.
Download a copy of our member engagement survey here, alternatively complete the survey online.
Global, virtual festival puts rare diseases into the spotlight!
Find out more about this exciting event and how to get FREE tickets here.
We recently launched a short survey across our r(20) member families, to find out a little about their diagnosis, seizures and whether they have tried any form of medicinal cannabis treatment. Read th