Comic covers

Our Patient Information comics are now available!

We're very proud to present to you our r(20) patient information booklets, comic style, created by families, for families. This is the culmination of over a year of hard work and we hope that you l

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Newsletter 9 Oct 20_FINAL

Newsletter #9 Oct 2020

Read our latest newsletter #9 to see what's changing at Ring20 and what we have planned for the coming months ahead.

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Member Engagement Survey Oct 2020

Ring20 Member Engagement Survey 2020

Your feedback is important to us and will help us shape what Ring20 looks like in the future. Download a copy of our member engagement survey here, alternatively complete the survey online.

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RAREfest20

Global, virtual festival puts rare diseases into the spotlight! Find out more about this exciting event and how to get FREE tickets here.

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r(20) diagnosis and access to CBD_9

r(20) diagnosis and CBD survey

We recently launched a short survey across our r(20) member families, to find out a little about their diagnosis, seizures and whether they have tried any form of medicinal cannabis treatment. Read th

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Mentoring opportunities

We have some exciting short-term mentoring opportunities at Ring20. Take a look: Digital Mentor Are you based in the UK? Have you been furloughed as a result of COVID-19? Do you have some spar

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Our latest Newsletter has landed!

Read our latest Newsletter jam-packed with information on our research projects and other activities. Printed copies have been posted to all members and supporters on our mailing list. Newsletter #

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COVID-19 and r(20) syndrome

A message from Dr Sophia Varadkar (Ring20 Medical Advisor) Dear Ring 20 Community We find ourselves in very exceptional times. Some of you have asked if there is any particular advice for you arou

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nihr RD

Help us create an r(20) Patient Statement

Dave our newest volunteer and Allison are attending a ‘Think Research!’ event in March organised by NIHR. We've been asked to produce a Ring20 ‘Patient Statement' to help shape future rare-disea

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Findacure student essay 2019

Student Voice Competition 2019

At the end of 2019 Findacure in conjunction with Medics 4 Rare Diseases (M4RD) launched their annual Student Voice essay competition. Here at Ring20 we were lucky to be paired with a medical student,

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