We recently launched a short survey across our r(20) member families, to find out a little about their diagnosis, seizures and whether tehy have tried any form of medicinal cannabis treatment. Read th
We have some exciting short-term mentoring opportunities at Ring20. Take a look:
Are you based in the UK? Have you been furloughed as a result of COVID-19? Do you have some spar
Read our latest Newsletter jam-packed with information on our research projects and other activities. Printed copies have been posted to all members and supporters on our mailing list.
A message from Dr Sophia Varadkar (Ring20 Medical Advisor)
Dear Ring 20 Community
We find ourselves in very exceptional times. Some of you have asked if there is any particular advice for you arou
Dave our newest volunteer and Allison are attending a ‘Think Research!’ event in March organised by NIHR. We've been asked to produce a Ring20 ‘Patient Statement' to help shape future rare-disea
At the end of 2019 Findacure in conjunction with Medics 4 Rare Diseases (M4RD) launched their annual Student Voice essay competition. Here at Ring20 we were lucky to be paired with a medical student,
It's time to get creative and be a part of our patient information booklet!
As you are probably already aware, following on from our workshop on 23 November we are now looking for our own character t
SAVE THE DATE! 9-11th Oct 2020
Join us for our r(20) families conference weekend in Brighton, UK.
More details coming soon....
Countdown to double donations week commencing 3rd Dec '19.
Find out more about our Ring20 Campaign in The Big Give Christmas Challenge here and see how you can participate.
Allison was interviewed by BBC news reporter Richard Westcott on 23rd Sept 19 whilst attending the CRDN RAREsummit19 at the Wellcome Genome Campus. Watch the interview here: