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Launching UNRAVEL!

Click here to find out more...UNRAVEL

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Rare Disease Day 2021

Here are a couple of videos from our r(20) families across the world for rare disease day:

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COVID-19 – priority for vaccinations

Individuals with r(20) syndrome (in UK) At Ring20, it has come to our attention that some individuals diagnosed with r(20) syndrome are not being offered the COVID-19 vaccine as part of priority grou

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Information leaflets

NEW!! We are excited to present two new information leaflets, one for parent/carers and one specifically for healthcare professionals:  r(20) information leaflets for healthcare professionals

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AGM 2020 and BIG ANNOUNCEMENT

Watch our Ring20 AGM 2020 and BIG ANNOUNCEMENT video here:

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Comic covers

Our Patient Information comics are now available!

We're very proud to present to you our r(20) patient information booklets, comic style, created by families, for families. This is the culmination of over a year of hard work and we hope that you l

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Newsletter 9 Oct 20_FINAL

Newsletter #9 Oct 2020

Read our latest newsletter #9 to see what's changing at Ring20 and what we have planned for the coming months ahead.

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Member Engagement Survey Oct 2020

Ring20 Member Engagement Survey 2020

Your feedback is important to us and will help us shape what Ring20 looks like in the future. Download a copy of our member engagement survey here, alternatively complete the survey online.

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RAREfest20

Global, virtual festival puts rare diseases into the spotlight! Find out more about this exciting event and how to get FREE tickets here.

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r(20) diagnosis and CBD survey

We recently launched a short survey across our r(20) member families, to find out a little about their diagnosis, seizures and whether they have tried any form of medicinal cannabis treatment. Read th

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