It's time to get creative and be a part of our patient information booklet!
As you are probably already aware, following on from our workshop on 23 November we are now looking for our own character t
SAVE THE DATE! 9-11th Oct 2020
Join us for our r(20) families conference weekend in Brighton, UK.
More details coming soon....
Countdown to double donations week commencing 3rd Dec '19.
Find out more about our Ring20 Campaign in The Big Give Christmas Challenge here and see how you can participate.
Allison was interviewed by BBC news reporter Richard Westcott on 23rd Sept 19 whilst attending the CRDN RAREsummit19 at the Wellcome Genome Campus. Watch the interview here:
Get your tickets for our Families Workshop in Birmigham on Sat 23rd Nov 2019:
More information on the workshop weekend can be found here:
Our latest blog from 16 year old Sophie and mum Jacqueline who took on a skydive for Ring20 and raised £1,000
As we celebrate #VolunteersWeek2019 and reach out to thank all of our volunteers, without who our patient support group wouldn't exist, our co-founder and secretary reflects on her volunteering experi
In this week's blog Torie Robinson from Epilepsy Sparks talks openly about her experiences of epilepsy and mental health issues which can affect the whole family
Read how Allison got on at the 4th European Reference Network (ERN) conference in Brussels, as part of the EpiCARE team.
We are excited to have teamed up with Genetics Disorders UK to offer you some fantastic challenge events in 2019. From the Prudential Ride London, to the Great North Swim and Great North Run.