Here are a couple of videos from our r(20) families across the world for rare disease day:
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Individuals with r(20) syndrome (in UK) At Ring20, it has come to our attention that some individuals diagnosed with r(20) syndrome are not being offered the COVID-19 vaccine as part of priority grou
Read More →NEW!! We are excited to present two new information leaflets, one for parent/carers and one specifically for healthcare professionals: r(20) information leaflets for healthcare professionals
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Watch our Ring20 AGM 2020 and BIG ANNOUNCEMENT video here:
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We're very proud to present to you our r(20) patient information booklets, comic style, created by families, for families. This is the culmination of over a year of hard work and we hope that you l
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Read our latest newsletter #9 to see what's changing at Ring20 and what we have planned for the coming months ahead.
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Your feedback is important to us and will help us shape what Ring20 looks like in the future. Download a copy of our member engagement survey here, alternatively complete the survey online.
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Global, virtual festival puts rare diseases into the spotlight! Find out more about this exciting event and how to get FREE tickets here.
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We recently launched a short survey across our r(20) member families, to find out a little about their diagnosis, seizures and whether they have tried any form of medicinal cannabis treatment. Read th
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