comic charater comp picture

r(20) Comic Character

It's time to get creative and be a part of our patient information booklet! As you are probably already aware, following on from our workshop on 23 November we are now looking for our own character t

Read More →
global keto

r(20) Families Conference 2020

SAVE THE DATE! 9-11th Oct 2020 Join us for our r(20) families conference weekend in Brighton, UK. More details coming soon....

Read More →
TBG Logo Sqaure Red Details@2x

Ready for Big Give Christmas Challenge?

Countdown to double donations week commencing 3rd Dec '19. Find out more about our Ring20 Campaign in The Big Give Christmas Challenge here and see how you can participate.

Read More →

Ring20 in the news!

Allison was interviewed by BBC news reporter Richard Westcott on 23rd Sept 19 whilst attending the CRDN RAREsummit19 at the Wellcome Genome Campus. Watch the interview here:

Read More →
Family Workshop_meme_FinalV1

Book now for our Families Workshop 2019

Get your tickets for our Families Workshop in Birmigham on Sat 23rd Nov 2019: Get Tickets More information on the workshop weekend can be found here: More info  

Read More →

Mother and daughter Flying High for Ring20

Our latest blog from 16 year old Sophie and mum Jacqueline who took on a skydive for Ring20 and raised £1,000

Read More →
plrh cambridge


As we celebrate #VolunteersWeek2019 and reach out to thank all of our volunteers, without who our patient support group wouldn't exist, our co-founder and secretary reflects on her volunteering experi

Read More →

#MentalHealthAwareness week

In this week's blog Torie Robinson from Epilepsy Sparks talks openly about her experiences of epilepsy and mental health issues which can affect the whole family

Read More →
The EpiCARE team

4th ERN Conference, Brussels 2018

Read how Allison got on at the 4th European Reference Network (ERN) conference in Brussels, as part of the EpiCARE team.

Read More →
Photo: Ben Queenborough for Prudential RideLondon

NEW! Challenge Events

We are excited to have teamed up with Genetics Disorders UK to offer you some fantastic challenge events in 2019. From the Prudential Ride London, to the Great North Swim and Great North Run. Limit

Read More →