Dave our newest volunteer and Allison are attending a ‘Think Research!’ event in March organised by NIHR. We've been asked to produce a Ring20 ‘Patient Statement' to help shape future rare-disea
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At the end of 2019 Findacure in conjunction with Medics 4 Rare Diseases (M4RD) launched their annual Student Voice essay competition. Here at Ring20 we were lucky to be paired with a medical student,
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It's time to get creative and be a part of our patient information booklet! As you are probably already aware, following on from our workshop on 23 November we are now looking for our own character t
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SAVE THE DATE! 9-11th Oct 2020 Join us for our r(20) families conference weekend in Brighton, UK. More details coming soon....
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Countdown to double donations week commencing 3rd Dec '19. Find out more about our Ring20 Campaign in The Big Give Christmas Challenge here and see how you can participate.
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Allison was interviewed by BBC news reporter Richard Westcott on 23rd Sept 19 whilst attending the CRDN RAREsummit19 at the Wellcome Genome Campus. Watch the interview here:
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Get your tickets for our Families Workshop in Birmigham on Sat 23rd Nov 2019: Get Tickets More information on the workshop weekend can be found here: More info
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Our latest blog from 16 year old Sophie and mum Jacqueline who took on a skydive for Ring20 and raised £1,000
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As we celebrate #VolunteersWeek2019 and reach out to thank all of our volunteers, without who our patient support group wouldn't exist, our co-founder and secretary reflects on her volunteering experi
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In this week's blog Torie Robinson from Epilepsy Sparks talks openly about her experiences of epilepsy and mental health issues which can affect the whole family
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