Take a look what life is like living with r(20) syndrome on our new personal stories page here.
We have just been awarded nearly £10k from BIG Lottery...learn more on how our BIG Lottery funds are to be spent here
Following the amazing news that the charity Genetic Disorders UK have awarded us a grant, a couple of our R(20) families have shared their personal stories to helped raise awareness ahead of Jeans for
The latest issue of our newsletter, with research news, details of our r(20) Activists Campaign, amazing fundraising efforts and how to join the r(20) Rare Connect community.
Newsletter #4 J
Children with Ring20 given grant from Jeans for Genes Day 2016
June 2016, Ring 20 Research and Support CIO is celebrating after receiving the news they will be given a grant from Genetic Diso
Latest issue of our newsletter, jam-packed with news, events and fundraising as well as write-ups from our volunteers...see details in our newsletter:
December 2015 Newsletter
View the video from our Italian Collaborative Research Group
for anyone who wishes to take part in a sporting event to raise funds for Ring20 Research and Support UK. Please contact us with details of your event
See our running vests here
We've just added information in our Research section of the Knowledge Base regards the Italian r(20) collaborative group who are conducting ongoing research into r(20) syndrome. They are currently see
We are delighted to welcome Tamzin Dunn to the team as our new Social Media volunteer.
Tamzin is one of our r(20) family members and kindly offered her support following our request in the Febr