The latest issue of our newsletter, with research news, details of our forthcoming r(20) families conference, amazing fundraising efforts and more...
Newsletter #5 May 2017
Have you got your tickets yet?
If not, check out our latest blog post and see if we can change your mind...
10 Reasons to go to our Family Conference
Tickets are now available!
Full price tickets are £15 per adult and £7.50 per child.
Early bird discounts of 50% apply if you purchase/register before 5th February 2017.
See our Famil
Don and Allison attended the Cambridge International Rare Disease Summit 2016 on 25th October 2016. Progam for the day centred around:
What can Cambridge contribute to global efforts in rare dis
Take a look what life is like living with r(20) syndrome on our new personal stories page here.
We have just been awarded nearly £10k from BIG Lottery...learn more on how our BIG Lottery funds are to be spent here
Following the amazing news that the charity Genetic Disorders UK have awarded us a grant, a couple of our R(20) families have shared their personal stories to helped raise awareness ahead of Jeans for
The latest issue of our newsletter, with research news, details of our r(20) Activists Campaign, amazing fundraising efforts and how to join the r(20) Rare Connect community.
Newsletter #4 J
Children with Ring20 given grant from Jeans for Genes Day 2016
June 2016, Ring 20 Research and Support CIO is celebrating after receiving the news they will be given a grant from Genetic Diso
Latest issue of our newsletter, jam-packed with news, events and fundraising as well as write-ups from our volunteers...see details in our newsletter:
December 2015 Newsletter