Our latest blog from 16 year old Sophie and mum Jacqueline who took on a skydive for Ring20 and raised £1,000
As we celebrate #VolunteersWeek2019 and reach out to thank all of our volunteers, without who our patient support group wouldn't exist, our co-founder and secretary reflects on her volunteering experi
In this week's blog Torie Robinson from Epilepsy Sparks talks openly about her experiences of epilepsy and mental health issues which can affect the whole family
Read how Allison got on at the 4th European Reference Network (ERN) conference in Brussels, as part of the EpiCARE team.
We are excited to have teamed up with Genetics Disorders UK to offer you some fantastic challenge events in 2019. From the Prudential Ride London, to the Great North Swim and Great North Run.
The latest BUMPER issue of our newsletter, with highlights from our r(20) Gala Ball and family picnic, update on Research and of course our Research Fund Campaign and much, much more...
Read Dawn Gray's blog post about her recent day out representing r(20) together with Jackie Aley (this was Jackie's first event attendance for us, and hopefully wont be her last??)
Read Dawn's blog
Now available to order...
Order your r(20) Families Conference DVD today and get a FREE copy to hand to your paediatrician/neurologist with every order (1 per family)!
More details her
We've added a new personal story - checkout Daan's personal story of how having r(20) syndrome led to a new invention here.
The latest issue of our newsletter, with highlights from our r(20) families conference, update on our Research Fund Campaign and more...
Newsletter #6 Dec 2017