nihr RD

Help us create an r(20) Patient Statement

Dave our newest volunteer and Allison are attending a ‘Think Research!’ event in March organised by NIHR. We've been asked to produce a Ring20 ‘Patient Statement' to help shape future rare-disea

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Findacure student essay 2019

Student Voice Competition 2019

At the end of 2019 Findacure in conjunction with Medics 4 Rare Diseases (M4RD) launched their annual Student Voice essay competition. Here at Ring20 we were lucky to be paired with a medical student,

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r(20) Comic Character

It's time to get creative and be a part of our patient information booklet! As you are probably already aware, following on from our workshop on 23 November we are now looking for our own character t

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r(20) Families Conference 2020

SAVE THE DATE! 9-11th Oct 2020 Join us for our r(20) families conference weekend in Brighton, UK. More details coming soon....

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Ready for Big Give Christmas Challenge?

Countdown to double donations week commencing 3rd Dec '19. Find out more about our Ring20 Campaign in The Big Give Christmas Challenge here and see how you can participate.

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Ring20 in the news!

Allison was interviewed by BBC news reporter Richard Westcott on 23rd Sept 19 whilst attending the CRDN RAREsummit19 at the Wellcome Genome Campus. Watch the interview here:

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Book now for our Families Workshop 2019

Get your tickets for our Families Workshop in Birmigham on Sat 23rd Nov 2019: Get Tickets More information on the workshop weekend can be found here: More info  

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Mother and daughter Flying High for Ring20

Our latest blog from 16 year old Sophie and mum Jacqueline who took on a skydive for Ring20 and raised £1,000

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As we celebrate #VolunteersWeek2019 and reach out to thank all of our volunteers, without who our patient support group wouldn't exist, our co-founder and secretary reflects on her volunteering experi

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#MentalHealthAwareness week

In this week's blog Torie Robinson from Epilepsy Sparks talks openly about her experiences of epilepsy and mental health issues which can affect the whole family

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