1.0Ring20 Onderzoek en ondersteuning UK CIOhttps://ring20researchsupport.co.uk/nlAlisonhttps://ring20researchsupport.co.uk/nl/author/alison/rich600338<blockquote class="wp-embedded-content" data-secret="xBEzvJQBKX"><a href="https://ring20researchsupport.co.uk/nl/story/anns-story/">Het verhaal van Ann – het perspectief van een ouder</a></blockquote><iframe sandbox="allow-scripts" security="restricted" src="https://ring20researchsupport.co.uk/nl/story/anns-story/embed/#?secret=xBEzvJQBKX" width="600" height="338" title="“Anns verhaal – Het perspectief van één ouder” – CIO van Ring20 Research and Support UK" data-secret="xBEzvJQBKX" frameborder="0" marginwidth="0" marginheight="0" scrolling="no" class="wp-embedded-content"></iframe><script> /*! This file is auto-generated */ !function(d,l){"use strict";l.querySelector&&d.addEventListener&&"undefined"!=typeof URL&&(d.wp=d.wp||{},d.wp.receiveEmbedMessage||(d.wp.receiveEmbedMessage=function(e){var t=e.data;if((t||t.secret||t.message||t.value)&&!/[^a-zA-Z0-9]/.test(t.secret)){for(var s,r,n,a=l.querySelectorAll('iframe[data-secret="'+t.secret+'"]'),o=l.querySelectorAll('blockquote[data-secret="'+t.secret+'"]'),c=new RegExp("^https?:$","i"),i=0;i<o.length;i++)o[i].style.display="none";for(i=0;i<a.length;i++)s=a[i],e.source===s.contentWindow&&(s.removeAttribute("style"),"height"===t.message?(1e3<(r=parseInt(t.value,10))?r=1e3:~~r<200&&(r=200),s.height=r):"link"===t.message&&(r=new URL(s.getAttribute("src")),n=new URL(t.value),c.test(n.protocol))&&n.host===r.host&&l.activeElement===s&&(d.top.location.href=t.value))}},d.addEventListener("message",d.wp.receiveEmbedMessage,!1),l.addEventListener("DOMContentLoaded",function(){for(var e,t,s=l.querySelectorAll("iframe.wp-embedded-content"),r=0;r<s.length;r++)(t=(e=s[r]).getAttribute("data-secret"))||(t=Math.random().toString(36).substring(2,12),e.src+="#?secret="+t,e.setAttribute("data-secret",t)),e.contentWindow.postMessage({message:"ready",secret:t},"*")},!1)))}(window,document); //# sourceURL=https://ring20researchsupport.co.uk/wp-includes/js/wp-embed.min.js </script>https://ring20researchsupport.co.uk/wp-content/uploads/2025/11/becca-and-lady.jpg525640For Ann, being a mother has meant walking beside her daughter through the unpredictable world of Ring Chromosome 20 syndrome. From the first signs to today, their journey reflects the patience, strength and love they have for each other. As we mark Epilepsy Awareness Month in the United States, Ann’s story reminds us that behind […]