Don Gordon helped to establish the Ring Chromosome 20 Foundation in early 2007. With over twenty years experience in media, marketing and publications Don was instrumental in establishing multiple col Read More →

Allison Watson is the parent of a child with r(20) and has been engaged for a number of years in voluntary efforts to help give mutual support to other families that are affected by the condition. All Read More →

Being semi retired now I have been interested in charitable work for the last few years and have previously carried out some volunteering work at Oxfam (retail) and in an environmental charity (finan Read More →

Dr Sophia Varadkar completed her undergraduate degree at Trinity College Dublin and her postgraduate medical training in Dublin and London. She is a Consultant Paediatric Neurologist at Great Ormond S Read More →

Gemma Underwood (MInstF) has over 13 years’ experience working in the voluntary sector, for small, medium and large charities, providing a wide range of services to vulnerable people. Specialising Read More →

Tomi joined us to add value to the team, she has volunteered in the past with Oxfam and BHF, she is passionate about giving back to the society. She is currently managing the upcoming family conferen Read More →

Jon and Tamzin are parents to Kieran who was diagnosed with Ring20 when he was 5.  Jon helps support the technical side of the website and maintains the Ring20 map.  Tamzin is the social media volun Read More →

Read More →

I am the mother of Callum, diagnosed with r(20) when he was 7 years old - some 10 years ago. He started with absence seizures which then developed into longer complex partial absences and had to be Read More →