Ring 20 Research Support UK Family Conference 2017 

Friday, 4th – Sunday 6th August 2017

Starting at 18:00 on the Friday and finishing at 13:00 Sunday.

Everton Football Club
Goodison Park
Goodison Rd, Liverpool, L4 4EL, 
United Kingdom

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everton-football-club

The weekend will include:

  • Updates about rare disease research from world experts in r(20) syndrome including Prof Nancy B. Spinner (US), Maria P. Canevine (Italy),  Prof Sameer Zuberi (UK)
  • Hearing from key speakers directly affected by rare disease
  • An opportunity to talk with researchers and professionals
  • To connect with other patients and carers
  • Welcome Drinks and nibbles on Friday night
  • Fabulous evening Family Event dinner Saturday night
  • Fun Social activities Sunday Morning

Join us the trustees and the speakers for this groundbreaking opportunity to socialise, network, celebrate and collaborate in a relaxed and informal surrounding.

With representatives from the Rare Disease Community, patients, charities and researchers the event offers fantastic opportunities for networking, new learning and information sharing.

We will be releasing more details as we get closer to the date about the content and outline for the conference so please keep tuned to the website and your inbox and social media channels.

 

Buy Tickets here

 

Here is what the ticket covers for the weekend:

Friday 4th August
6pm – Reception with drinks and nibbles at the Novotel Hotel
Saturday 5th August Everton Football club
8:30am Registration and coffee
9am – Start the day will include:
Talks from 7 guest speakers – all with Ring20 experience:
  • Prof Nancy B. Spinner (US) – Geneticist
  • Laura Conlin (US) – Geneticist
  • Maria P. Canevini (Italy) – Paediatric Neurologist
  • Prof Sameer Zuberi (UK) – Paediatric Neurologist
  • Dr Archana Desurkar (UK) – Paediatric Neurologist
  • Dr Sophia Varadkar (UK) – Paediatric Neurologist
Workshops for r(20) patients with ESN and Young Epilepsy transitions worker
Q and A panel
Lunch and Short tour of the stadium
Talks from our Trustees and individuals directly affected by rare disease

Lots of opportunities to speak to the guest speakers and other families

6:30pm -11pm Gala Dinner at the Jury’s Inn, Liverpool (Keel Wharf)

Sunday 6th August
Fun Social activity during the morning. Details to be announced.

If you wish to attend:

You can purchase tickets now, click here to buy your tickets.

EARLYBIRD 50% DISCOUNT IS ONLY UNTIL FEBRUARY 5TH 2017.

Generous £75 travel/accommodation subsidy available to the 1st 15 families who buy tickets.

 

Accommodation details

If you haven’t booked a hotel to stay at during the conference weekend yet, we do recommend doing so soon, as August is a busy time and the prices do go up.  A number of families, trustees and speakers are already booked at either the Liverpool City Centre Premier Inn or the Novotel hotel.

The Premier Inn, Liverpool One currently has rooms available from £220+ for 2 nights online (double family room for up to  2 adults/2 children under 16) this is room only and the non-refundable rate.

We might be able to still secure further rooms at the Novotel at our preferential rate for Bed and Breakfast. Contact Tomi to book at charity rate below: tomi@ring20researchsupport.co.uk
  • Friday 4 August 2017 £139.00 per room (double occupancy)
  • Saturday 5 August 2017 £179.00 per room (double occupancy)

Here is a link to a map of other nearby hotels to help you find the most suitable option for you: nearby hotels 

Don’t forget to visit easyfundraising before booking accommodation and travel as your booking could raise a donation to our cause at no extra cost to yourself.

Travel details

Liverpool has great transport links and is about 1 hr from Manchester by train/car.

If you book a city centre hotel e.g. those suggested above, then you should be within walking distance of all amenities for the weekend. (Everton FC is just outside the city centre – we are looking at providing a minibus service on the Saturday to/from the venue – single pick-up/drop off point in Liverpool city centre.)

Virgin trains run a regular hourly service from London Euston to Liverpool Lime Street station (which is a short walk to the city centre hotels). The journey takes just 2hrs 7 mins. Liverpool Lime Street can also be accessed from trains in other parts of the UK (you may need to change trains at Crewe). Check thetrainline.com for your journey – book early for the best rates.

Liverpool has its own airport – John Lennon Airport, although you may find that there are more frequent flights/cheaper options into Manchester airport – which is a 1hr taxi/train ride into Liverpool City Centre.

If you’re driving to Liverpool and staying in the city centre then chargeable off-site parking is available at Q-Park Hanover Street (L1 4AF) at a discounted rate (for those staying at Premier Inn, Liverpool One) of £10.50 per 24 hours or £4.50 overnight between 5pm-9am. Parking ticket to be validated at hotel reception. Check your hotel for similar parking concessions as most city centre hotels do not provide onsite parking.

A great opportunity:

We would love as many of our families to attend as possible so, if you want to join us but have any difficulties in doing so please contact Tomi as we may be able to provide some assistance for you.

Contact Tomi via email: tomi@ring20researchsupport.co.uk
We do hope you can make it and look forward to seeing you there!

Funded By

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Supported by Jeans for Genese