Ring 20 Research Support UK Family Conference 2017 

Friday, 4th – Sunday 6th August 2017

Starting at 18:00 on the Friday and finishing at 13:00 Sunday.

Everton Football Club
Goodison Park
Goodison Rd, Liverpool, L4 4EL, 
United Kingdom

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The weekend will include:

  • Updates about rare disease research from world experts in r(20) syndrome including Prof Nancy B. Spinner (US), Prof Maria P. Canevini (Italy),  Prof Sameer Zuberi (UK)
  • Hearing from key speakers directly affected by rare disease
  • An opportunity to talk with researchers and professionals
  • To connect with other patients and carers
  • Welcome Drinks and nibbles on Friday night
  • Fabulous evening Family Event dinner Saturday night
  • Fun Social activity Sunday Morning

Join us the trustees and the speakers for this groundbreaking opportunity to socialise, network, celebrate and collaborate in a relaxed and informal surrounding.

With representatives from the Rare Disease Community, patients, charities and researchers the event offers fantastic opportunities for networking, new learning and information sharing.

Further details about the content and outline for the conference can be found here.

 

Buy Tickets here

 

Here is what the ticket covers for the weekend:

Friday 4th August
6pm – 8pm Reception with drinks and nibbles at the Novotel Hotel, Hanover Street
Saturday 5th August Everton Football Club
8:30am Registration and coffee
9am – Start the day will include:
Talks from 7 guest speakers – all with Ring20 experience:
  • Prof Nancy B. Spinner (US) – Geneticist
  • Laura Conlin (US) – Geneticist
  • Maria P. Canevini (Italy) – Paediatric Neurologist
  • Prof Sameer Zuberi (UK) – Paediatric Neurologist
  • Dr Archana Desurkar (UK) – Paediatric Neurologist
  • Dr Sophia Varadkar (UK) – Paediatric Neurologist
Workshops for r(20) patients with ESN and Young Epilepsy transitions worker
Q and A panel
Lunch and Short tour of the stadium
Talks from our Trustees and individuals directly affected by rare disease

Lots of opportunities to speak to the guest speakers and other families

4:30pm – 5:00pm AGM

7:00pm             pre-dinner drinks at the Jury’s Inn, Liverpool (Keel Wharf)

7:30pm -11pm Gala Dinner

Sunday 6th August
Fun Social activity during the morning:
                       The Beatles Story
10:00am The Beatles Story (Guided Tour) at Albert Dock
1:00pm Time to say Goodbye!…

Funded By:

BIG Lottery logo

Supported by Jeans for Genese

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Exhibitors: Young Epilepsy Epilepsy_Action_Logo

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