In 2017 we held the 1st ever r20 families conference in the world; 20 families attended from across the world. The event was highly valued by our families and healthcare professionals (HCP’s) alike and we hope to reach an even greater number of recipients to educate, inform and develop long lasting relationships. Our families should be empowered by their engagement with HCP’s and that they in turn will be better equipped to understand r(20) from diagnosis to treatment, care and management.
“What for you, were the highlights of the conference?
Feedback from speakers at a previous event