Provides free and confidential email and Freephone (0808 800 5050) helplines offering advice and information on the condition, its treatment and a wide range of associated issues. It has Europe’s most visited epilepsy website and produces a wide range of information booklets, fact sheets and other resources. (UK)
Visit EPILESPY ACTION website
See the difference your help and support has made to families living with Ring Chromosome 20 Syndrome