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Please find below various resources mentioned throughout this website that are available for you to download.
Items below include PDFs, videos/photos and links to useful websites.
Information about r(20) syndrome
r(20) Patient Information Booklets
Check out our patient information booklets created ‘by families, for families’ and presented in comic format.
r(20) Posters
Help promote awareness of r(20) syndrome by downloading our posters and putting them up in your local doctors surgery and/or hospital clinic
r(20) Publications (authored by Ring20)
- Rare. The importance of Research, Analysis, Reporting and Education in ‘solving’ the genetic epilepsies: A perspective from the European patient advocacy group for EpiCARE
- Assessing the role of ketogenic dietary therapy in ring chromosome 20 syndrome: A patient‐led approach
- Life with r(20) – Ring Chromosome 20 Syndrome
r(20) Videos
Subscribe to our YouTube channel to view all our Ring20 videos here
Watch the full speaker presentations, interviews and Q&A from our 2017 Families Conference on our dedicated YouTube channel playlist
Information about Ring20 the charity
Ring20 Newsletters
Our most recent newsletters are available here for you to download
Ring20 AGM
Documents relating to our latest AGM meeting
Ring20 Volunteers
Apply to volunteer for Ring20
- Volunteer Application Form
- Volunteer Reference Form
Man an exhibition stand for Ring20
