As a patient support group we are putting r(20) on the map – quite literally! We are plotting known cases of r(20) around the world onto a Google map to highlight the number of cases and their location.
We have 2 versions of the map:
- PUBLIC – an anonymous map of known cases, for sharing with anyone interested including Health Professionals
- PRIVATE – accessed restricted to consenting members, who allow their contact details to be shared with other consenting r(20) families
ARE YOU ON THE R(20) MAP?
If you would like to be added to the Private and/or Public r(20) maps, please sign up with this form. Please note you must have a gmail address to participate in the PRIVATE map.