Team

We are a small team, made up of one part-time member of staff and several part-time volunteers. Our work is overseen by a group of trustees.

Our goal is to provide support for individuals, families and healthcare professionals who are affected by, or who come into contact with Ring Chromosome 20 Syndrome or r(20) – a rare epilepsy syndrome

Our dedicated team works very closely to ensure that we are delivering against our main aims: supporting families, raising awareness and understanding of r(20) syndrome, funding medical research, and improving the lives of those living with r(20).