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OUR MISSION

To provide support for individuals, families and healthcare professionals who are affected by, or who come into contact with Ring Chromosome 20 Syndrome or r(20) – a rare epilepsy syndrome.

 

OUR MEMBERS MAP
As a patient support group we are putting r(20) on the map – quite literally!
We have started plotting known cases of r(20) around the world onto a Google map to highlight the number of cases and their location.
GET SUPPORT
We continue to expand our umbrella of a information about r(20), and offer support to members and their families. Find out how we can help you, keep you informed, and put you in touch with our other members.
GET INVOLVED
We rely on the support of our fundraisers to meet the day-to-day running costs of providing a support network for families affected by r(20). Find out how you can get involved and help us to raise funds and awareness.
#FF0000 Raised 67,046 £ towards the 78,000 £ target.RESEARCH FUND                                    So far we have raised £67,046 towards our £78,000 target! Thank you for your support.
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Raised: £0,00 Goal: £0,00

NEW RESEARCH

Details of ongoing and new research studies can be found here…

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255x200-news
Raised: £0,00 Goal: £0,00

RING20 NEWS

Keep up to date with news about Ring20 research and support. From our latest events and fundraising, to

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255x200-info
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RING20 KNOWLEDGE BASE

At Ring20 Research Support UK we aim to establish an ever-growing knowledge-base on epidemiology,

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Raised: £3.210,00 Goal: £6.500,00

SIGNS & SYMPTOMS

Find out how to recognise r(20) syndrome using the most current research data.

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