Ring20 Research and Support UK CIO HOME - Ring20 Research and Support UK CIO

Latest News

4th ERN Conference, Brussels 2018 - Read how Allison got on at the 4th European

NEW! Challenge Events - We are excited to have teamed up with

Ring20 Newsletter Aug 2018 - The latest BUMPER issue of our

Patient Perspectives on Rare Disease Mar ’18 - Read Dawn Gray’s blog post about her

Check out our new range of Challenge Event places on offer, including Prudential Ride London. Photo: Ben Queenborough for Prudential RideLondon ...Read More
Find out more about Ring 20 research & support >> ...Read More
Join our r(20) Support Group Forum - available in 6 European languages >> ...Read More
Our 1st ever r(20) families' conference >> ...Read More

Ring20 Research and Support UK CIO is a member of the European Patient Advocacy Group (EPAG) for:

EpiCARE – ERN for rare and complex epilepsies.

Watch these videos to see how ERN’s can help you:

OUR MEMBERS MAP

As a patient support group we are putting r(20) on the map – quite literally!
We have started plotting known cases of r(20) around the world onto a Google map to highlight the number of cases and their location.

We continue to expand our umbrella of a information about r(20), and offer support to members and their families. Find out how we can help you, keep you informed, and put you in touch with our other members.

We rely on the support of our fundraisers to meet the day-to-day running costs of providing a support network for families affected by r(20). Find out how you can get involved and help us to raise funds and awareness.

#FF0000 Raised 64,934 £ towards the 138,106 £ target.

So far we have raised £64,934 towards our £138,106 target! Thank you for your support.

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NEW RESEARCH

Details of ongoing and new research studies can be found here…

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RING20 NEWS

Keep up to date with news about Ring20 research and support. From our latest events and fundraising, to

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RING20 KNOWLEDGE BASE

At Ring20 Research Support UK we aim to establish an ever-growing knowledge-base on epidemiology,

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Raised: £3.210,00 Goal: £6.500,00

SIGNS & SYMPTOMS

Find out how to recognise r(20) syndrome using the most current research data.