Share Your Story

The stories shared by our r(20) patients and families are of significant value to the r(20) community. They have helped us develop a common understanding of living with the syndrome.

If you have been diagnosed recently with r(20), are a carer or know of someone who suffers from r(20), then we would love to hear your story. 

PLEASE NOTE: If you have previously submitted a story and would like to provide an update, please click here to use the ‘Update Your Story’ form.

This is my own story
I'm sharing on behalf of someone else

Please upload up to 4 images we can use with your story