Unique – understanding chromosome disorders


Unique, the Rare Chromosome Disorder Support Group, exists to inform, support and alleviate the isolation of anyone affected by a rare chromosome or genomic  disorder, including Ring 20 syndrome, and to raise public awareness.

Read about Ring 20 Chromosome syndrome


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Latest News and Research

Like most people I wanted to volunteer because of a desire to give back to the community and do something for the greater good.
Research has shown that patients and carers who live with a rare disease experience a negative impact on wellbeing and mental health.