Website Fundraising Campaign

Our target was £2,000 and you smashed it! You’ve raised a huge £2,300 – FANTASTIC!! This has made the creation of this website possible. We hope you like it and find it useful? We welcome any feedback you may have, so please email us with any ideas or suggestions on the new email address at the top of the page.fundraising totaliser_20141230

fundraising-totaliser_20141230-300x225

Got a question?

Latest News and Research

Like most people I wanted to volunteer because of a desire to give back to the community and do something for the greater good.
Research has shown that patients and carers who live with a rare disease experience a negative impact on wellbeing and mental health.