Volunteers wanted!

Could you spare a day or two to help at one of our forthcoming events?

Don is hosting a stand at the  EUROPEAN HUMAN GENETICS CONFERENCE 2015 June 6-9th inclusive. We need another volunteer(s) to help man our r(20) exhibition stand, to talk to the delegates and give out vital information on r(20) diagnosis and correct genetic testing.

If you could travel or live not too far away, Don would be most grateful of aother pair of hands!

You do not have to commit to helping for the whole 4 days, just 1 or 2 days would be of great help (and we can reimburse reasonable expenses/accomodation costs).

If you can help, do get in touch with Don at:  don@ring20researchsupport.co.uk

Got a question?

Latest News and Research

Like most people I wanted to volunteer because of a desire to give back to the community and do something for the greater good.
Research has shown that patients and carers who live with a rare disease experience a negative impact on wellbeing and mental health.