#VolunteersWeek2019

As we celebrate #VolunteersWeek2019 and reach out to thank all of our volunteers, without who our patient support group wouldn’t exist, our co-founder and secretary reflects on her volunteering experience and shares a recent ‘week in the life of…’

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Like most people I wanted to volunteer because of a desire to give back to the community and do something for the greater good.
Research has shown that patients and carers who live with a rare disease experience a negative impact on wellbeing and mental health.