r(20) diagnosis and CBD survey

We recently launched a short survey across our r(20) member families, to find out a little about their diagnosis, seizures and whether they have tried any form of medicinal cannabis treatment. Read the results of our survey.

r(20) diagnosis and access to CBD_9

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Latest News and Research

Like most people I wanted to volunteer because of a desire to give back to the community and do something for the greater good.
Research has shown that patients and carers who live with a rare disease experience a negative impact on wellbeing and mental health.