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What exactly is r(20) syndrome?

If you’ve found some of the UNRAVEL information too medical or scientific so far, we encourage you to watch this short animation bringing the lead characters from our comics to life.

Follow Zara and Otsi as they chat about what we DO know and what we DON’T yet know about r(20) syndrome and where we are heading in terms of research…

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Latest News and Research

Read the documents from our latest AGM
NEW!! We are excited to present two new information leaflets, one for parent/carers and one specifically for healthcare professionals: