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Your feedback is important to us and will help us shape what Ring20 looks like in the future.
Despite the fact rare diseases affect one in seventeen people, those affected tell Cambridge Rare Disease Network they’ve been all but forgotten during the last six months of the COVID-19 pandemic.
We recently launched a short survey across our r(20) member families, to find out a little about their diagnosis, seizures and whether they have tried any form of medicinal cannabis treatment. Read the results of our survey.
Are you based in the UK? Have you been furloughed as a result of COVID-19? Do you have some spare time and skills that you could put to good use to help us maintain our vital patient support group services?
Read our latest Newsletter jam-packed with information on our research projects and other activities. Printed copies have been posted to all members and supporters on our mailing list.
Your latest newsletter from Ring20, jam packed with updates on our projects and activites.
