We are delighted to share with you that we have been successful in securing funding from Pears Foundation and London Catalyst – a huge thanks to both for supporting this important initiative.
There are a wide variety of new technologies that are being developed to increase the accuracy of diagnosis and improve the management of epilepsy. In this blog we focus on just some of the medical devices and technologies available or being developed for self management of epilepsy.
Like most people I wanted to volunteer because of a desire to give back to the community and do something for the greater good.
Research has shown that patients and carers who live with a rare disease experience a negative impact on wellbeing and mental health.
Making genomic understanding of Ring Chromosome 20 Syndrome possible
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.