Children with Ring20 given grant from Jeans for Genes Day 2016
June 2016, Ring 20 Research and Support CIO is celebrating after receiving the news they will be given a grant from Genetic Disorders UK, the national charity that organizes the annual fundraising day, Jeans for Genes Day. This donation from funds raised on the day will be used to fund a part time family support worker.
Allison said: “This grant is wonderful news. It means we can fund fund a crèche and activities for affected children and their siblings during the organisation’s family conference.”
Genetic Disorders UK’s Jeans for Genes Day is an annual fundraising event when school children and office workers wear their jeans in exchange for a donation to the charity. Although individually genetic disorders are rare, together they affect 1 in 25 children. This means that more than 30,000 babies each year are born in the UK with a genetic condition. Sadly, genetic disorders and their associated health problems mean that they are the biggest cause of death of children aged 14 years and under. Funds from Jeans for Genes Day are granted to specialised charities to provide care and support for children affected by genetic disorders. This year Jeans for Genes Day will be held on Friday 23rd September.
Caroline Harding, the CEO of Genetic Disorders UK said: “We are delighted to be helping Ring 20 Research and Support CIO support children with Ring 20. Our grant programme is open to all UK support groups and registered charities who work to improve the lives of children and families affected by genetic disorders. In 2016, 22 charities will benefit from the funds raised by the public on Jeans for Genes Day.”
- More information on the Jeans for Genes Day grant programme is available at geneticdisordersuk.org
- Jeans for Genes Day raises money for Genetic Disorders UK, a charity that provides much needed advice and support for individuals and families affected by genetic disorders. jeansforgenes.org
- Jeans for Genes Day is an annual fundraising event, this year it will be held on Friday 23rd September. School children and office workers are encouraged to wear their jeans for the day in exchange for donation. jeansforgenesday.org
- Genetic disorders are caused by an alteration in DNA. This may mean that either a gene or several genes are missing, repeated or in the wrong order. Altered genes can affect a child’s senses, movement, ability to learn or appearance.