BIG Lottery Grant

We have just been awarded nearly £10k from BIG Lottery…learn more on how our BIG Lottery funds are to be spent here

placeholder.png

Got a question?

Latest News and Research

Like most people I wanted to volunteer because of a desire to give back to the community and do something for the greater good.
Research has shown that patients and carers who live with a rare disease experience a negative impact on wellbeing and mental health.