As a patient support group we are putting r(20) on the map – quite literally! We are plotting known cases of r(20) around the world onto a Google map to highlight the number of cases and their general location.
We have 2 versions of the map:
- PUBLIC – an anonymous map of known cases
- to show the reach of our support group including to family members, Healthcare Professionals, funders and researchers
- PRIVATE – for Ring20 family members only (consent required)
- to facilitate connections between Ring20 families locally, nationally and internationally
If you would like to be added to either of our Ring20 maps, please complete the form here.