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Information leaflets

NEW!! We are excited to present two new information leaflets, one for parent/carers and one specifically for healthcare professionals:

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Latest News and Research

Impact report 2024_25

See the difference your help and support has made to families living with Ring Chromosome 20 Syndrome
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EURORDIS Volunteer Award 2026

Have You Heard The News? 🏆📰 And the EURORDIS Black Pearl Volunteer Award 2026 goes to...
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