Rare Disease Day 2021

Here are a couple of videos from our r(20) families across the world for rare disease day:

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Latest News and Research

We are delighted to share with you that we have been successful in securing funding from Pears Foundation and London Catalyst – a huge thanks to both for supporting this important initiative.
There are a wide variety of new technologies that are being developed to increase the accuracy of diagnosis and improve the management of epilepsy. In this blog we focus on just some of the medical devices and technologies available or being developed for self management of epilepsy.