Jessica’s Sparky Halloween Party

JESSICA’S RING20 JOURNEY

OUR FIRST FUNDRAISING EVENT HAS BEEN A HUGE SUCCESS!

With the support of family and friends, we’re excited to update that Jessica’s Sparky Halloween Party was a huge success, and has us well on our way to trashing our 12 month RESEARCH fundraising campaign target of £20,000.

This one event has raised £1,550.  Matched funding and a very kind donations has taken the event total to over £2,000.

This is the first of many events to follow over the course of the next 12 months.  Other events now scheduled are:

  • Bake Sale and raffle in work – November 2017
  • Just Giving Tuesday – November 2017
  • Santa Sleigh – December 2017
  • Santa Dash (5K), Aviemore – Jessica – December 2017
  • Jessica’s birthday – school event – January 2018
  • Pub crawl – January 2018
  • Race night  – February 2018
  • Work raffle – March 2018
  • Stirling Marathon – Chris +3 people – April 2018
  • Gung Ho family event – May 2018
  • Ben Nevis Climb – Claire +15 people and still more people joining event – May 2018
  • Gala ball – September 2018

 

OUR ASK TO OTHER MEMBER FAMILIES

Are there any fundraising activities that you could arrange locally to support the Ring 20 RESEARCH fund too?

We can honestly say that we were worried we wouldn’t have the time to dedicate to this but now that we’re up and running, we finally feel that as parents to a child with Ring 20, we’re doing our bit to RAISE AWARENESS and FUNDS….. that will go straight into the new Ring 20 RESEARCH fund.

WE CAN MAKE A DIFFERENCE IF WE ALL WORK TOGETHER.  Please get in touch with Allison, Chris or myself if you’re keen to find out more.  And just think, if these events could be replicated by the families who attended the conference alone, we could be running the same events in numerous parts of Britain, Europe, America, Canada and even Australia with all families looking for the same outcome, a cure, targeted medication or even just a better understanding of Ring 20 Chromosome Syndrome.

You’ll be amazed at just how many people and established fundraising groups that have come forward to offer help and donate monies from their proceeds raised at other fund raising events just by raising AWARENESS alone of Jessica’s condition.

An example of this is the many coffee mornings and fundraising events that are happening now in our local area to raise funds for the Ring 20 cause.

Let’s do this.

Claire and Chris Sullivan