Georgina – Living with Ring20 syndrome
Georgina – Living with Ring20 syndrome
Jaevin’s epilepsy has gotten worse over the years. He has been induced in several comas every year since 2015 n the ICU for status epilepticus for several days at a time until the neuro team found a concoction of medication that would calm his seizures down.
It just didn’t make sense, the constant tiredness, being lost in school, the pauses when she talked. I had never seen anything like that.
Ketogenic diet is having a huge impact on Jessica’s quality of life. We can’t emphasise enough that we have our little girl back, her energy levels have returned, she is much brighter and alert and is back to being the active little girl she was, playing with her football team and attending her dance classes once again.
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