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Jessica’s Story

Ketogenic diet is having a huge impact on Jessica’s quality of life. We can’t emphasise enough that we have our little girl back, her energy levels have returned, she is much brighter and alert and is back to being the active little girl she was, playing with her football team and attending her dance classes once again.

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photo of Kieran Dunn

Kieran’s Story

The conclusion was that he had epilepsy but without any known cause which is the case in about half of people diagnosed with epilepsy.

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Rachel’s Story

Rachel’s had a big change in her life recently as she left school last July and now has two PAs (Personal Assistants) who take her out during the week…….Her PAs are also keeping on top of her education where she has come on leaps and bounds. Overall, she is currently a very happy young lady.

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Ella’s story

Watch Ella’s journey with r(20) – Comic Workshop, Birmingham 2019: Mum Kirstie says: Who knows what the future holds for Ella, all I know is that

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Karen’s story

When we stayed at the hospital in Japan, we were informed that there was another girl who also had r(20) was a patient at the same hospital. Because of her record, Karen’s doctor thought that Karen might have r(20) as well and they were right.

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Share your experience of r(20)

We love receiving your stories to publish on our website. Families around the world can really connect with your personal journey: through diagnosis, treatment, daily life and more.