We are delighted to announce that our 2025/2026 Annual Impact Report is now available to read. The 2025/2026 report highlights the incredible work we have carried out over the past year to support individuals and families living with Ring20 Epilepsy.
After a short pause, we’re delighted to share that Step Into the Ring (our monthly virtual support group for young adults living with Ring20 epilepsy) is returning on the last Sunday of each month at 11am (UK time).
In June, we launched our Families Liaison Project, which was created to provide support and information for families living with Ring20 epilepsy. Today, we’re speaking with Sarah, the project’s Families Liaison Officer, to learn more about the initiative and her work.
As part of today’s Volunteers’ Week celebrations, we wanted to shine a spotlight on the unsung heroes of our charity: our amazing trustees. Today, we’re speaking with Clara, who has been volunteering at Ring20 Research & Support since 2021.
As part of Volunteers’ Week, we're highlighting the incredible work that our past and present volunteers have done to support the charity.As part of today’s post, we have interviewed Kallif, one of our longest-serving volunteers.
We’re delighted to share that we have recently secured a £3,000 grant from The Nineveh Trust, which will support the development of our new Families Liaison Project.
See the difference your help and support has made to families living with Ring Chromosome 20 Syndrome
Have You Heard The News? ??
And the EURORDIS Black Pearl Volunteer Award 2026 goes to...
Dale, one of our Trustees and Ring20 Champion bravely put himself forward for a head shave to raise funds for us...
New look, new feel...we're back with the latest update from Ring20. Read our latest eNews for r(20) families
NEW!! Our Connecting Families leaflets have been translated into different languages
Can you travel to CHOP? And are you willing to help with a genomic research study for Ring20?
