Families Conference – Liverpool 2017​

The weekend included:

• Updates about rare disease research from world experts in r(20) syndrome including Prof Nancy B. Spinner (US), Prof Maria P. Canevini (Italy),  Prof Sameer Zuberi (UK)
• Hearing from key speakers directly affected by rare disease
• An opportunity to talk with researchers and professionals; and
• To connect with other patients and carers
• Fabulous evening,  family gala dinner on Saturday night
• Fun social activity on Sunday morning

You can watch the full speaker presentations, interviews and Q&A from the event on our YouTube channel.