Families Conference – Liverpool 2017​


Our inaugural r(20) families conference was a great success!


August 5, 2017

The weekend included:
  • Updates about rare disease research from world experts in r(20) syndrome including Prof Nancy B. Spinner (US), Prof Maria P. Canevini (Italy),  Prof Sameer Zuberi (UK)
  • Hearing from key speakers directly affected by rare disease
  • An opportunity to talk with researchers and professionals; and
  • To connect with other patients and carers
  • Fabulous evening,  family gala dinner on Saturday night
  • Fun social activity on Sunday morning
You can watch the full speaker presentations, interviews and Q&A from the event on our YouTube channel.

Here are some images from the event:


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