Sebastian Burckle (21) died unexpectedly in September, 2023 whilst on holiday in Mexico.

Sebastian lived with Ring Chromosome 20 Syndrome, an ultra-rare genetic condition, its main feature being recurrent and drug-resistant seizures. There are about 200 reported cases in medical literature; it is that rare.

On the night of Tuesday 7th September 2023, Sebastian had a tonic-clonic (grand mal) seizure.

After recovering, he went to bed but did not wake up the next morning.

Sebastian was passionate about solving complex geometrical puzzles. He was into gaming, tech and gadgets. He composed music, DJ’ed, designed and produced light & laser shows. He enjoyed surfing in the ocean. He was a pupil at the Oratory Primary School, Westminster Cathedral Choir School and Wetherby Senior School. He was looking forward to re-starting an undergraduate in Psychology and Criminology at University of Brighton.

As you can see, Sebastian never allowed his condition to define him or stop him from having the life he wanted to live.

We are devastated as a family but appreciate the many gestures of support and solidarity from friends, loved ones and colleagues.