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CHOP Genomic study

Can you travel to CHOP? And are you willing to help with a genomic research study for Ring20?
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Steve’s Iron Man Challenge, Majorca 2025

I decided it was a great opportunity to also raise money for a great cause and Carl’s daughter Lily was the person I wanted to do it for.
2 mins Mins
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EpiCARE Information leaflets (now available in different languages)

NEW!! We are excited to present two new information leaflets, one for parent/carers and one specifically for healthcare professionals:
2 mins Mins
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Support for Families leaflets (now available in different languages)

NEW!! We are excited to present two new information leaflets, one for parent/carers and one specifically for healthcare professionals:
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VNS study

Have you ever had a VNS implant? Find out how you can help with research for r(20)....whether VNS helped you or not, your experience matters.
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AGM 2024

Read the documents from our latest AGM
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