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Lydia Hirst (Chair)

Trustee

Hi, my name is Lydia Hirst and I’m a new Trustee for Ring20. I am very much looking forward to learning more about Ring20: how the charity supports families as well as enabling research into this disease. In my professional life, I worked in the chemicals industry and then set up my own management consultancy. In recent years, I have designed and delivered management and leadership training courses in the UK and abroad. Due to Covid, my training stopped abruptly last March and I am now tutoring young people in maths and physics. I intend to do this privately as well as volunteering with charities that support disadvantaged students. Over the years, I have been involved with many charities. Most recently, I was a Trustee with Guideposts Trust a mental health and well-being charity based in Oxfordshire.  I was the Chair for 5 years and prior to that a Trustee. I hope that my skillset will be of value to the board of Ring20 and look forward to meeting many of you in the near future.
Lydia-Hirst

Meet the team at Ring20

Medical Advisors at Ring20

ANTONIO-GIL-NAGEL

Antonio Gil-Nagel (Spain)

Chief Medical Advisor (SAB Chair)

Rhys Thomas

Rhys Thomas (UK)

Ring20 Deputy Medical Advisor

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Kentaro Tokumoto (Japan)

Neurologist

Yushi Inoue

Yushi Inoue (Japan)

Epileptologist and psychiatrist

Ken Myers

Ken Myers (Canada)

Paediatric neurologist clinician-scientist and assistant professor

Ramki Rajagopalan

Ramakrishnan (Ramki) Rajagopalan (USA)

Lead Research Bioinformaticist

Nancy Spinner

Nancy Spinner (USA)

Professor of Pathology and Laboratory Medicine

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Alexander Rotenberg (USA)

Professor of Neurology

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Lieven Lagae (Belgium)

Professor Paediatric Neurology

Angela Peron

Angela Peron (Italy)

Associate professor of Medical Genetics

Prof Maria Canevini

Maria Paola Canevini (Italy)

Director of the Neurology

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Simona Balestrini (Italy/UK)

Associate Professor of Child Neurology

Phil Tittensor

Phil Tittensor (UK)

Consultant Nurse

Sarah Tittensor

Sarah Tittensor (UK)

Learning disability nurse

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Ailsa McLellan (UK)

Consultant Paediatric Neurologist

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Archana Desurkar (UK)

Medical Advisor

Arjune Sen

Arjune Sen (UK)

Medical Advisor

Meet the Ring20 Trustees

TimBuckinx06

Tim Buckinx (Patient Representative)

Trustee

Dale Ward3

Dale Ward (Patient Representative)

Trustee

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Kim Parks (Treasurer)

Trustee

Lydia-Hirst

Lydia Hirst (Chair)

Trustee