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Lydia Hirst (Chair)

Trustee

Hi, my name is Lydia Hirst and I’m a new Trustee for Ring20. I am very much looking forward to learning more about Ring20: how the charity supports families as well as enabling research into this disease. In my professional life, I worked in the chemicals industry and then set up my own management consultancy. In recent years, I have designed and delivered management and leadership training courses in the UK and abroad. Due to Covid, my training stopped abruptly last March and I am now tutoring young people in maths and physics. I intend to do this privately as well as volunteering with charities that support disadvantaged students. Over the years, I have been involved with many charities. Most recently, I was a Trustee with Guideposts Trust a mental health and well-being charity based in Oxfordshire.  I was the Chair for 5 years and prior to that a Trustee. I hope that my skillset will be of value to the board of Ring20 and look forward to meeting many of you in the near future.

Meet the team at Ring20

Medical Advisors at Ring20

Antonio Gil-Nagel (Spain)

Chief Medical Advisor (SAB Chair)

Rhys Thomas (UK)

Ring20 Deputy Medical Advisor

Kentaro Tokumoto (Japan)

Neurologist

Yushi Inoue (Japan)

Epileptologist and psychiatrist

Ken Myers (Canada)

Paediatric neurologist clinician-scientist and assistant professor

Ramakrishnan (Ramki) Rajagopalan (USA)

Lead Research Bioinformaticist

Nancy Spinner (USA)

Professor of Pathology and Laboratory Medicine

Alexander Rotenberg (USA)

Professor of Neurology

Lieven Lagae (Belgium)

Professor Paediatric Neurology

Angela Peron (Italy)

Associate professor of Medical Genetics

Maria Paola Canevini (Italy)

Director of the Neurology

Simona Balestrini (Italy/UK)

Associate Professor of Child Neurology

Phil Tittensor (UK)

Consultant Nurse

Sarah Tittensor (UK)

Learning disability nurse

Ailsa McLellan (UK)

Consultant Paediatric Neurologist

Archana Desurkar (UK)

Medical Advisor

Arjune Sen (UK)

Medical Advisor

Meet the Ring20 Trustees

Tim Buckinx (Patient Representative)

Trustee

Dale Ward (Patient Representative)

Trustee

Kim Parks (Treasurer)

Trustee

Lydia Hirst (Chair)

Trustee