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Sarah Strachan

Families Liaison Officer

I currently work within the NHS and have a background in support focused and liaison based roles, where I have spent a lot of time working closely with people and helping them navigate difficult or uncertain situations.
I was really drawn to Ring20 because of the strong sense of community and the opportunity to make a meaningful difference to families living with a rare condition. I am passionate about helping to remove barriers to support, improving access to information and helping people feel less isolated and more connected during difficult times.
What particularly stood out to me about Ring20 was the charity’s commitment to listening to families and ensuring their voices help shape support services, research engagement and future development. I am really looking forward to building relationships with families, learning more about the community and becoming part of the wider Ring20 team.
Sarah Strachan

Meet the team at Ring20

Medical Advisors at Ring20

ANTONIO-GIL-NAGEL

Antonio Gil-Nagel (Spain)

Chief Medical Advisor (SAB Chair)

Rhys Thomas

Rhys Thomas (UK)

Ring20 Deputy Medical Advisor

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Kentaro Tokumoto (Japan)

Neurologist

Yushi Inoue

Yushi Inoue (Japan)

Epileptologist and psychiatrist

Ken Myers

Ken Myers (Canada)

Paediatric neurologist clinician-scientist and assistant professor

Ramki Rajagopalan

Ramakrishnan (Ramki) Rajagopalan (USA)

Lead Research Bioinformaticist

Nancy Spinner

Nancy Spinner (USA)

Professor of Pathology and Laboratory Medicine

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Alexander Rotenberg (USA)

Professor of Neurology

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Lieven Lagae (Belgium)

Professor Paediatric Neurology

Angela Peron

Angela Peron (Italy)

Associate professor of Medical Genetics

Prof Maria Canevini

Maria Paola Canevini (Italy)

Director of the Neurology

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Simona Balestrini (Italy/UK)

Associate Professor of Child Neurology

Phil Tittensor

Phil Tittensor (UK)

Consultant Nurse

Sarah Tittensor

Sarah Tittensor (UK)

Learning disability nurse

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Ailsa McLellan (UK)

Consultant Paediatric Neurologist

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Archana Desurkar (UK)

Medical Advisor

Arjune Sen

Arjune Sen (UK)

Medical Advisor

Meet the Ring20 Trustees

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Andre Reis e Silva (Patient Representative)

Trustee

ANTONIO-GIL-NAGEL

Antonio Gil-Nagel (Chief Medical Advisor)

Trustee

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Tim Buckinx (Patient Representative)

Trustee

Clara Tang

Clara Tang (Research)

Trustee

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Kim Parks (Treasurer)

Trustee

Lydia-Hirst

Lydia Hirst (Chair)

Trustee

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