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CRDN Summit 2017

Here’s what Dawn had to say about the event:

“I was pleased to attend the conference with Allison in October 2017. It was very interesting. There were several people who did talks on their rare diseases. All small like us and are wanting to make awareness too. Met some interesting people. Going to these events helps people recognise us. Wearing our t shirts helped people know who and what we are.

Very enjoyable, nice meeting professionals, so informal and a good day. Thank you for organising this Allison.”

Dawn Gray

Read more about the summit and see how we got on displaying the r(20) patient journey poster…

Ultime notizie e ricerche

Vuoi sapere quale impatto ha il lavoro di Ring20 (l'ente di beneficenza)? Continuare a leggere...
Abbiamo intervistato tre famiglie che vivono con la sindrome r(20). Ecco cosa avevano da dire...